Living into death: a case for an iterative, fortified and cross-sector approach to advance care planning

Anthropology & Medicine
Rebecca LlewellynPeter Radue

Abstract

Advance care planning (ACP) has been framed as best practice for quality palliative care, yet a growing body of literature affirms the need for an early iterative ACP process to begin when people are young and healthy. A significant gap appears to exist in the literature regarding the utility of death conversations outside the end-of-life context. Could 'death conversations' early in life be an effective tool by which doctor and patient can co-construct a more healthful way of life, and realistic relationship with death? And what variables must be taken into account for these conversations to proceed successfully? This paper provides a narrative exploration of the value of death conversations in the clinical context in New Zealand. Five exemplars are discussed, drawn from a sample of 21 semi-structured interviews with young older adults (54-65 years old) not receiving palliative care or diagnosed with a terminal illness. Together, these narratives indicate that further community consultation is required to determine culturally appropriate ways to initiate productive conversations around aging, death and dying and how to build patient/practitioner/family relationships which allow these conversations to happen safely. There is a ...Continue Reading

References

Jan 1, 1984·Social Science & Medicine·A Kellehear
Mar 18, 1982·The New England Journal of Medicine·E J Cassel
May 23, 1998·Health & Social Work·L A McLaughlin, K L Braun
Dec 21, 2002·Geriatric Nursing·Linda Briggs, Elaine Colvin
Jun 26, 2003·Palliative Medicine·C Y TseS Y Fok
Mar 12, 2004·Qualitative Health Research·Liz Kiata, Ngaire Kerse
Jul 28, 2005·Nursing Ethics·Pauline WarehamKate Diesfeld
Feb 14, 2006·The Hastings Center Report·Susan E HickmanSusan W Tolle
Dec 23, 2006·American Journal of Kidney Diseases : the Official Journal of the National Kidney Foundation·Sara N Davison, Colleen Torgunrud
May 10, 2007·Journal of General Internal Medicine·Shmuel ReisJeffrey M Borkan
Mar 11, 2009·Clinical Medicine : Journal of the Royal College of Physicians of London·Simon ConroyUNKNOWN Guideline Development Group
Jun 16, 2009·Journal of Nursing Care Quality·Heidi Putman-CasdorphKimberly Messenger
Aug 18, 2009·Journal of the American Geriatrics Society·Terri R FriedJohn R O'Leary
Dec 10, 2009·Journal of Palliative Medicine·Tara Tucker
Nov 3, 2010·Journal of Clinical Nursing·Helen Y L Chan, Samantha M C Pang
Sep 7, 2011·Nursing Ethics·Ann Gallagher
Mar 13, 2012·Geriatric Nursing·Eunjeong KoMonica Bonilla
Dec 4, 2012·Journal of Pain and Symptom Management·Ryan D McMahanRebecca L Sudore
Apr 20, 2013·American Journal of Public Health·Dan K Morhaim, Keshia M Pollack
May 4, 2013·Health & Social Care in the Community·Rosemary FreyZonghua Wang
Nov 19, 2013·The Medical Journal of Australia·Ian A ScottMichael P Daly
Dec 18, 2013·Health & Social Care in the Community·Rosemary FreyMerryn Gott
Jul 6, 2014·The American Journal of Hospice & Palliative Care·Sangeeta C AhluwaliaKarl A Lorenz
Dec 24, 2014·Journal of Palliative Medicine·Nicola RaePhillipa J Malpas
May 13, 2015·Proceedings of the National Academy of Sciences of the United States of America·Aviv Bachan, Lee R Kump
Jun 2, 2015·Australian Health Review : a Publication of the Australian Hospital Association·Vanette E J McLennanLesley M Chenoweth
Jul 28, 2016·Anthropology & Medicine·Erica Borgstrom

❮ Previous
Next ❯

Citations

Mar 8, 2020·BMC Palliative Care·Nienke FleurenCees M P M Hertogh
Dec 10, 2020·The American Journal of Hospice & Palliative Care·Kristin R BaughmanDenise Kropp

❮ Previous
Next ❯

Software Mentioned

EoL

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.