Living Life After Traumatic Brain Injury: Phase 1 of a Longitudinal Qualitative Study

The Journal of Head Trauma Rehabilitation
Kathryn M McPhersonTBI Experiences Research Group

Abstract

To explore what helps and hinders recovery and adaptation after disabling traumatic brain injury (TBI) and make recommendations for improving service responsiveness. A longitudinal qualitative descriptive study across all TBI severities. Community. Forty people with TBI, and 22 significant others, 6 to 9 months following a TBI. Semistructured interviews, analyzed using qualitative description, focused on (a) key areas of importance or concern and (b) strategies or actions that people found helpful or that hindered recovery. Traumatic brain injury produced a complex set of challenges in keeping up with life, and understanding what having a TBI means for, and to, me. This period encompassed a tangled fit and misfit in life as brain injury did not occur in isolation. People had to actively change some aspects of life and yet allow other changes to happen. Valued supports from others included being looked out for and having someone to help drive the process. Improved services delivery and better outcomes may result if we respond to the person within his or her context; listen, believe, and acknowledge the person's story through our actions; and avoid assumptions about aspects of life that mean most to people and who/what may help b...Continue Reading

References

Jan 1, 1990·Social Science & Medicine·K Charmaz
Jul 8, 1995·BMJ : British Medical Journal·N Mays, C Pope
Apr 1, 1995·Research in Nursing & Health·M Sandelowski
Apr 1, 1997·Research in Nursing & Health·S ThorneJ MacDonald-Emes
Jun 10, 1983·Sociology of Health & Illness·K Charmaz
Jan 22, 2000·BMJ : British Medical Journal·C PopeN Mays
Aug 15, 2000·Research in Nursing & Health·M Sandelowski
Jan 17, 2004·Qualitative Health Research·Sally ThorneSusan R Harris
Mar 22, 2008·Health & Social Care in the Community·Natasha MoloczijNicola M Kayes
Sep 26, 2008·The Journal of Head Trauma Rehabilitation·Elaine deGuiseEric Roger
Nov 11, 2008·Neuroepidemiology·Suzanne L Barker-ColloValery L Feigin
Nov 27, 2008·The Journal of Head Trauma Rehabilitation·Eduard ZaloshnjaAnbesaw W Selassie
Feb 12, 2009·Brain Injury : [BI]·William M M LevackKath M McPherson
Mar 19, 2009·Clinical Rehabilitation·Kathryn M McPhersonUNKNOWN Members of the Goals-SR Research Group
Mar 21, 2009·Brain Injury : [BI]·Diana JacksonKathryn M McPherson
May 23, 2009·The Journal of Head Trauma Rehabilitation·Joanna Kristin Fadyl, Kathryn M McPherson
May 30, 2009·Disability and Rehabilitation·J RobisonA Ashburn
Jul 16, 2009·Primary Care Respiratory Journal : Journal of the General Practice Airways Group·Veronika WilliamsKathryn McPherson
Jul 18, 2009·BMC Medical Research Methodology·Mette Asbjoern NeergaardJens Sondergaard
Sep 30, 2009·BMJ : British Medical Journal·Scott A MurrayAziz Sheikh
May 11, 2010·Disability and Rehabilitation·William M M LevackJoanna K Fadyl
May 28, 2010·Journal of Neurotrauma·Brent E Masel, Douglas S DeWitt
Nov 28, 2012·Lancet Neurology·Valery L FeiginUNKNOWN BIONIC Study Group
May 16, 2013·Brain Injury : [BI]·Emilie E Godwin, Jeffrey S Kreutzer
Jul 13, 2014·Qualitative Health Research·Emily J ThomasWilliam J Taylor
Apr 3, 2015·International Journal of Speech-language Pathology·Jacinta Douglas
May 2, 2015·The Journal of Head Trauma Rehabilitation·Herman R LukowJeffrey S Kreutzer
Dec 29, 2015·Archives of Physical Medicine and Rehabilitation·Jeffrey S KreutzerLaura E Dreer
Jan 1, 2016·The British Journal of General Practice : the Journal of the Royal College of General Practitioners·Alice TheadomUNKNOWN BIONIC Research Group
Dec 3, 2016·Nursing Inquiry·Joanna K FadylUNKNOWN TBI Experiences Research Group

❮ Previous
Next ❯

Citations

Mar 24, 2020·Neuropsychological Rehabilitation·Marina DowningJennie Ponsford
Dec 11, 2021·Disability and Rehabilitation·Marina G DowningJennie Ponsford

❮ Previous
Next ❯

Related Concepts

Related Feeds

Brain Injury & Trauma

brain injury after impact to the head is due to both immediate mechanical effects and delayed responses of neural tissues.