Living with difference: experiences of adolescent girls with cleft lip and palate

The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association
Kim TiemensChristopher R Forrest

Abstract

This study explored the experiences of adolescent girls with cleft lip and palate who were preparing for orthognathic surgery. A qualitative study, based on a phenomenological approach, explored adolescents' experiences. Two 1-hour semistructured interviews were conducted before surgery, and member checking was employed to verify findings with each participant. A tertiary care pediatric hospital in central Canada. A criterion sampling technique was used to recruit a sample of seven participants with cleft lip and palate ranging in age from 15 to 20 years who were scheduled for cleft orthognathic surgery. PARTICIPANTS described experiencing teasing, bullying, and stares. In many cases, participants sought to resist and dismiss negative social attitudes about their visible difference while working to combat this with a positive view of who they really are. To varying degrees, participants felt constricted in engaging in the community as they were worried what others thought of their visible difference. They worked at finding ways to reduce the impact of social stigma through coping strategies, social supports, and reconstructive surgery. Adolescent girls can experience strain associated with living with a facial difference; howev...Continue Reading

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Citations

Sep 12, 2014·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Kristin Billaud FeragenIngela Lundin Kvalem
Jan 23, 2016·Psychology & Health·Nicola Marie Stock, Kristin Billaud Feragen
Mar 20, 2018·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Nicola Marie Stock, Matthew Ridley
Apr 13, 2018·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Wendy NichollsSuzanne Robinson
Apr 14, 2018·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Wendy NichollsLinda Selvey
Apr 11, 2018·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Kayla V HamiltonJonathan A Bernstein
Feb 13, 2019·Dentistry Journal·Gunilla Pousette LundgrenGöran Dahllöf
Mar 14, 2019·European Journal of Orthodontics·Renato FacoDaniela Garib
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Mar 17, 2020·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Michelle AcumJudith Young
Sep 14, 2017·Dental press journal of orthodontics·Rita de Cássia Moura Carvalho LaurisDaniela Gamba Garib
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May 16, 2019·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Francesca WogdenLouise Dibben
Dec 2, 2020·Plastic Surgical Nursing : Official Journal of the American Society of Plastic and Reconstructive Surgical Nurses·Rebbeka CarmonaJanine Rosenberg

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