Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature

Canadian Journal of Gastroenterology & Hepatology
Laura E DowsettFiona Clement

Abstract

Background and Aims. The lived experience of HCV has not been well documented in the literature. The aim of this systematic review was to understand the experiences of living with Hepatitis C Virus (HCV). Methods. Five databases were searched from inception until January 19, 2015. Studies were included if they focused on adults diagnosed with HCV; reported experience living with HCV; and described original research. Results. 46 studies were included. Studies found that participants had reduced quality of life due to physical symptoms. Due to physical symptoms and discrimination, many participants switched to part-time work or quit their jobs. Many individuals reported negative experiences with the healthcare system; themes of feeling unsupported, not having adequate information, and not feeling involved in decisions were reported. Stigma significantly impacted those living with HCV. Conclusions. Published literature indicates that those with HCV often feel stigmatized and unsupported in their care, relationships, and work environments, while simultaneously coping with physical and psychological symptoms. This synthesis points to areas where greater education, compassion, and patient-centered healthcare could improve the experie...Continue Reading

References

Jan 4, 2001·International Journal of Nursing Studies·M GlackenV Coates
Oct 31, 2002·Hepatology : Official Journal of the American Association for the Study of Liver Diseases·Michael W Fried
Feb 27, 2003·Journal of Clinical Nursing·Michèle GlackenJohn Hegarty
Oct 16, 2003·International Journal of Epidemiology·Matthew G LawAlex Wodak
Nov 5, 2004·Australian Health Review : a Publication of the Australian Hospital Association·Meredith Temple-SmithMark Stoov Eacute
Feb 5, 2005·Women & Health·Belinda Crockett, Sandra M Gifford
Feb 19, 2005·Health & Social Care in the Community·Nat M J WrightLesley Jones
Mar 15, 2005·Education for Health : Change in Training & Practice·Carla Treloar, Max Hopwood
Jun 28, 2006·Clinical Nursing Research·Barbara L PatersonBarbara Moffat
Aug 29, 2006·World Journal of Gastroenterology : WJG·Julie A BlasioleSusan L Zickmund
Feb 8, 2007·Journal of Health Psychology·Rebecca Sutton, Carla Treloar
Jul 17, 2007·Western Journal of Nursing Research·Gail ButtLiza K McGuinness
Aug 1, 2007·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Tracey DudleyDavid John Mutimer
May 7, 2008·The Journal of the Association of Nurses in AIDS Care : JANAC·Carol BovaLisa Ogawa
Sep 23, 2008·Journal of General Internal Medicine·Erik J GroesslSamuel B Ho
Jan 6, 2009·Psychosomatics·E Amy JankeLiana Fraenkel
Apr 10, 2009·Gastroenterology Nursing : the Official Journal of the Society of Gastroenterology Nurses and Associates·Grace A MoorePat Bradley
May 7, 2009·Health Care for Women International·Anna OlsenPhyll Dance
Jul 9, 2009·Journal of Clinical Nursing·Myra SgorbiniDebra Jackson
Aug 8, 2009·Sociology of Health & Illness·Magdalena Harris
Dec 17, 2009·Gastroenterology Nursing : the Official Journal of the Society of Gastroenterology Nurses and Associates·Michelle Kinder
Apr 21, 2010·Qualitative Health Research·Magdalena Harris
Feb 9, 2011·Gastroenterology Nursing : the Official Journal of the Society of Gastroenterology Nurses and Associates·May McCreaddieJeff Frew
Jun 18, 2011·Liver International : Official Journal of the International Association for the Study of the Liver·Markus CornbergStefan Zeuzem
Jul 9, 2011·Psychology & Health·Margaret Fry, Glen Bates
Sep 8, 2011·Current Opinion in HIV and AIDS·Gregory J DoreJürgen Rockstroh
Jan 4, 2012·Hepatology : Official Journal of the American Association for the Study of Liver Diseases·Maxine M DennistonRuth B Jiles
Apr 28, 2012·Gastroenterology·Hashem B El-Serag
Jun 22, 2012·Clinical Infectious Diseases : an Official Publication of the Infectious Diseases Society of America·Francisco M AverhoffDeborah Holtzman
Jun 22, 2012·Canadian Journal of Gastroenterology = Journal Canadien De Gastroenterologie·Robert P MyersJordan J Feld
Jun 23, 2012·The International Journal on Drug Policy·A OlsenL Maher
Jul 4, 2012·Nursing Science Quarterly·Joan M MacNeil
Sep 7, 2012·Australian Journal of Primary Health·Anna OlsenCathy Banwell
Nov 14, 2012·Antiviral Research·Vincent SorianoPablo Barreiro
Nov 23, 2012·Hepatology : Official Journal of the American Association for the Study of Liver Diseases·Khayriyyah Mohd HanafiahSteven T Wiersma
Nov 29, 2012·BMC Medical Research Methodology·Allison TongJonathan Craig
Dec 22, 2012·Qualitative Health Research·Anna OlsenPhyll Dance
Jan 11, 2013·Liver International : Official Journal of the International Association for the Study of the Liver·Tarik Asselah, Patrick Marcellin
Jun 15, 2013·Journal of Transcultural Nursing : Official Journal of the Transcultural Nursing Society·Noureen Shehzad JiwaniMehnaz Hanzala
Jun 22, 2013·European Journal of Gastroenterology & Hepatology·Carol S NorthMamta K Jain
Aug 1, 2013·Gastroenterology Nursing : the Official Journal of the Society of Gastroenterology Nurses and Associates·Paulien BruningsJane A Buxton
May 9, 2014·Journal of Clinical Nursing·Rebekah HillBarbara Richardson

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Citations

Mar 26, 2019·Australian and New Zealand Journal of Public Health·Prabha LakhanPaul J Clark
Jun 6, 2020·Journal of Viral Hepatitis·M Elle SaineVincent Lo Re
Sep 19, 2019·Journal of Religion and Health·Malik Muhammad SohailRachmah Ida
Jun 26, 2020·Australian Journal of Primary Health·Davoud PourmarziTony Rahman
Nov 5, 2019·The International Journal of Health Planning and Management·Masoud BehzadifarNicola Luigi Bragazzi
Nov 8, 2020·The International Journal on Drug Policy·Kathleen M WardOluwaseun Falade-Nwulia
Jul 3, 2021·Drug and Alcohol Dependence·Hilary L SurrattNikita Vundi
Jul 16, 2021·The International Journal on Drug Policy·Magdalena HarrisJeffrey V Lazarus
Sep 15, 2021·The Medical Journal of Australia·Paul J Clark
Dec 7, 2021·Applied Health Economics and Health Policy·Paul G CartyMairin Ryan

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