Long-term Outcome of Hirschsprung Disease: Impact on Quality of Life and Social Condition at Adult Age

Diseases of the Colon and Rectum
Farouk DrissiPaul-Antoine Lehur

Abstract

Hirschsprung disease is a rare congenital disease typically requiring surgical treatment during childhood. Quality of life and social condition at adult age can be impaired by disease-specific sequelae. This study aimed to assess the quality of life and social outcome of adult patients operated on for Hirschsprung disease during childhood. Patients operated on for Hirschsprung disease during childhood were identified and specific questionnaires were sent to them. Data from 2 referral centers were used. Patients who completed the questionnaires regarding quality of life and social condition were included. The Hirschsprung's Disease and Anorectal Malformations Quality of Life disease-specific questionnaire (8 dimensions explored; each scored from 0 to 100 maximum score) and a sociodemographic questionnaire were sent to identified patients. Sociodemographic data were compared with those of the French general population. Thirty-four patients had Hirschsprung disease (men, 76%; mean age, 32 years) were included in the study. Mean total Hirschsprung's Disease and Anorectal Malformations Quality of Life score was 611 of 800 (maximum score 800). The 2 most impaired dimensions were "physical symptoms" and "diarrhea" (62.9/100 and 73.6/1...Continue Reading

References

Nov 18, 2008·European Journal of Pediatric Surgery : Official Journal of Austrian Association of Pediatric Surgery ... [et Al] = Zeitschrift Für Kinderchirurgie·S BarrenaJ A Tovar
Mar 24, 2010·Seminars in Pediatric Surgery·Risto J Rintala, Mikko P Pakarinen
May 11, 2010·Journal of Pediatric Gastroenterology and Nutrition·Anna GunnarsdóttirLars-Torsten Larsson
Aug 18, 2010·Journal of Pediatric Surgery·Kjetil Juul StensrudKristin Bjørnland
Jul 15, 2015·Journal of Pediatric Surgery·Anna Löf GranströmTomas Wester
Jul 8, 2016·Pediatric Surgery International·J ZimmerP Puri

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Citations

Jun 17, 2020·Journal of Pediatric Gastroenterology and Nutrition·Mariana FernandesCaterina Grano
Nov 18, 2020·Journal of Laparoendoscopic & Advanced Surgical Techniques. Part a·Kin Wai Edwin ChanYuk Him Peter Tam

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