Longitudinal Evaluation of Transition Services ("LETS Study"): protocol for outcome evaluation.

BMC Pediatrics
Irina TsybinaColin Macarthur

Abstract

Because of advances in medical treatment, most children with physical disabilities can expect to achieve near normal life spans. Typically, coordinated teams of health care providers in specialized pediatric settings care for these children. As these children reach adulthood, however, the availability of services and expertise changes because the adult health care system has different processes designed to meet their specialized needs. Gaps in continuity of care during the transition from pediatric to adult services, and associated poor health outcomes are well documented. In response, new models of care are being introduced to address the complex process of health care transition. This paper describes a study protocol of a client-centred, prospective, longitudinal, mixed-method evaluation of linked model of health care across the lifespan (the LIFEspan Model), offered by a pediatric rehabilitation centre and an adult rehabilitation centre. This project will include a process and an outcome evaluation of the LIFEspan Model. The process evaluation will detail the specific service delivery that occurs with respect to preparation for transition and transfer of care through chart audits of pediatric medical records and qualitative ...Continue Reading

Associated Clinical Trials

References

Jul 1, 1995·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·D Rosen
Jul 1, 1995·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·G BowesU Bühlmann
Nov 1, 1993·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·R W BlumG B Slap
Aug 1, 1996·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·S E StevensW D Biggar
May 1, 1997·Developmental Medicine and Child Neurology·C J StevensonR Stevenson
Aug 1, 1997·Rheumatic Diseases Clinics of North America·P H White
Apr 16, 1998·Pediatric Neurology·D J StraussT W Anderson
May 5, 1999·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·P ScalR Blum
Sep 3, 1999·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·G HawthorneR Osborne
Sep 30, 2000·Assistive Technology : the Official Journal of RESNA·K P Murphy
Jul 31, 2002·Diabetic Medicine : a Journal of the British Diabetic Association·S KippsD B Dunger
Nov 7, 2002·Developmental Medicine and Child Neurology·Annette Majnemer, Catherine Limperopoulos
Nov 14, 2003·Health and Quality of Life Outcomes·John HorsmanGeorge Torrance
Jun 19, 2004·Disability and Rehabilitation·Luc NoreauChantal Viscogliosi
Jan 5, 2005·Pediatrics·John G ReissLeslie R Walker
Jan 5, 2005·Archives of Pediatrics & Adolescent Medicine·Paul W Newacheck, Sue E Kim
May 25, 2005·Pediatric Transplantation·Janet E McDonagh
Jul 5, 2005·Annals of the Rheumatic Diseases·L P RobertsonUNKNOWN British Society of Paediatric and Adolescent Rheumatology
Nov 5, 2005·The American Journal of Occupational Therapy : Official Publication of the American Occupational Therapy Association·Mary Ann McColl
Mar 9, 2006·Disability and Rehabilitation·Nancy L YoungJ Ivan Williams
Jun 23, 2006·Rheumatology·J E McDonaghUNKNOWN British Society of Paediatric and Adolescent Rheumatology
Dec 1, 2006·Physical & Occupational Therapy in Pediatrics·Debra StewartMary Law
Aug 7, 2007·Archives of Physical Medicine and Rehabilitation·Jessie A BinksNancy L Young
Aug 24, 2007·Archives of Disease in Childhood·Janet E McDonagh
Oct 17, 2007·International Journal of Adolescent Medicine and Health·Simone L CraigHelen Bibby
Mar 5, 2008·Current Opinion in Neurology·Gregory S Liptak
Oct 22, 2008·Journal of Paediatrics and Child Health·Katharine S SteinbeckSusan J Towns
Jun 6, 2009·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Graeme Hawthorne
Jul 21, 2009·Current Opinion in Organ Transplantation·Janet E McDonagh, Miriam Kaufman
Nov 26, 2009·Archives of Physical Medicine and Rehabilitation·Thilo Kroll, Jacqui Morris
Jun 19, 2010·Pediatric Transplantation·J E McDonagh, D A Kelly
Sep 2, 2010·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·Laura JurasekDaphne Quigley

❮ Previous
Next ❯

Citations

Jul 20, 2014·Zeitschrift für Rheumatologie·K MindenS Müther
Nov 18, 2015·Child: Care, Health and Development·S LindsayJ Maxwell
Feb 11, 2015·Archives of Physical Medicine and Rehabilitation·Sally LindsayAngela Colantonio
Oct 2, 2015·BMC Health Services Research·Hannah MerrickUNKNOWN Transition Collaborative Group
Oct 8, 2014·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·Margaret McManusJeanne W McAllister
Nov 8, 2016·American Journal of Physical Medicine & Rehabilitation·Lavinia Teixeira-MachadoJosimari Melo DeSantana
Jun 1, 2021·Disability and Rehabilitation·Sally Lindsay, Azar Varahra

❮ Previous
Next ❯

Clinical Trials Mentioned

NCT00975338

Software Mentioned

HUI3
NVivo®
LIFE
AQoL
Arc
SAS®
LIFEspan

Related Concepts

Related Feeds

Birth Defects

Birth defects encompass structural and functional alterations that occur during embryonic or fetal development and are present since birth. The cause may be genetic, environmental or unknown and can result in physical and/or mental impairment. Here is the latest research on birth defects.

Brain Injury & Trauma

brain injury after impact to the head is due to both immediate mechanical effects and delayed responses of neural tissues.