[Mapping the intricacies of care networks for persons with disabilities, from the perspectives of users-citizens-guides].

Salud colectiva
Juliana SampaioMaria Fernanda de Britto Lyra

Abstract

This article presents an analysis of the production of care networks for persons with disabilities in the state of Paraíba, Brazil. We employed a qualitative methodology with a cartographic approach, involving the participation of four users-citizens-guides. Weekly virtual meetings were held throughout the second half of 2020, in which we were able to collect, systematize, and theorize on four issues: 1) guilt and (non) life expectancy on the part of persons with disabilities; 2) the place of disability in family dynamics; 3) the production of specific core relational dependency networks; and 4) the public vs. private care offerings for persons with disabilities. Based on these findings, we were able to lend visibility to and explicitly affirm the ways in which these user-citizens participate in the complex process of care building for persons with disabilities and their families.

References

Sep 25, 2008·Cadernos de saúde pública·Olga Maria Bastos, Suely Ferreira Deslandes
Jun 22, 2010·Cadernos de saúde pública·Lilia Blima SchraiberOtávio Valença
Aug 31, 2010·Ciência & saúde coletiva·Rosana Kuschnir, Adolfo Horácio Chorny
Nov 30, 2011·Ciência & saúde coletiva·Rosana MachinThiago Félix Pinheiro
Aug 29, 2014·Cadernos de saúde pública·Luiz Carlos de Oliveira CecilioSandra Maria Spedo
Oct 27, 2016·Ciência & saúde coletiva·Paula Gaudenzi, Francisco Ortega
Jun 15, 2017·Ciência & saúde coletiva·Consuelo Sampaio MenesesSandra Maria Spedo

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