'Mastering an unpredictable everyday life after stroke'--older women's experiences of caring and living with their partners

Scandinavian Journal of Caring Sciences
Gunilla Gosman-Hedström, Synneve Dahlin-Ivanoff

Abstract

The shift from older persons living in institutions to living in the community naturally affects both the older persons and their partners. The informal care is often taken for granted, and the research that focuses on the diversity of older female carers needs is scarce. To explore and learn from the older women how they experience their life situation and formal support as carers of their partners after stroke and to suggest clinical implications. The design of the study is qualitative being based on the focus group method. Sixteen carers, median age 74 years (range 67-83), participated in four focus group discussions, which each met once for not more than 2 hours. The discussions resulted in one comprehensive theme; 'Mastering an uncertain and unpredictable everyday life'. Three subthemes emerged from the material: 'Living with another man' where the carers discussed not only the marked change in their partner's personality, but also the loss of a life-companion and their mutual intellectual contact; 'Fear of it happening again', comprising the carers' experiences of fear and confinement, of always having to be ready to help and of being trapped at home; 'Ongoing negotiation', referring to the carers' struggling and negotiat...Continue Reading

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Citations

Feb 6, 2014·Scandinavian Journal of Caring Sciences·Helena Tholin, Anette Forsberg
Aug 20, 2016·Chronic Illness·Victoria L Solomi, Rachel E Casiday
Oct 12, 2018·Health & Social Care in the Community·Irène RisRomy Mahrer Imhof
Dec 21, 2018·Scandinavian Journal of Caring Sciences·Jenni RiekkolaGunilla Isaksson
Nov 27, 2019·Health & Social Care in the Community·Kristina M KokoreliasJill I Cameron
Jun 20, 2017·American Journal of Physical Medicine & Rehabilitation·Shilpa KrishnanTimothy A Reistetter
Jul 3, 2019·Scandinavian Journal of Occupational Therapy·Tenelle HodsonPetrea Cornwell
Feb 25, 2020·Nursing Open·Sheena RamazanuVico Chung Lim Chiang
Nov 28, 2019·BMC Health Services Research·Hilde Solli, Sigrun Hvalvik
Sep 13, 2018·Topics in Stroke Rehabilitation·Michael J McCarthyBrett M Kissela
Dec 21, 2020·Research in Nursing & Health·Elton H LoboMohamed Abdelrazek
Mar 1, 2018··Angelica Porto C. de SouzaRenata Zilse

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