Meaning of self-management from the perspective of individuals with traumatic spinal cord injury, their caregivers, and acute care and rehabilitation managers: an opportunity for improved care delivery

BMC Neurology
Sarah E P MunceSusan B Jaglal

Abstract

The trend of decreasing length of stay in rehabilitation facilities has led to individuals with spinal cord injury (SCI) entering the community with unmet needs and fewer self-care skills to prevent secondary complications. The implementation of a self-management program for individuals with SCI for the management of these complex needs, including secondary complications, may be one option to fill these care gaps. A greater understanding of the meaning of self-management may facilitate the development of a tailored self-management program in this population. Thus, the current research aims to understand the meaning of self-management in traumatic SCI from the perspectives of individuals with traumatic SCI and their caregivers as well as acute care/trauma and rehabilitation managers. A descriptive qualitative approach was used. Semi-structured telephone interviews were conducted with 26 individuals with traumatic SCI, their family members/caregivers, and managers from acute care/trauma and rehabilitation centres. Inductive thematic analysis was applied. The meaning of self-management in SCI related to two overarching themes of internal and external responsibility attribution and revealed differences between the meaning of self-m...Continue Reading

References

Jul 1, 1997·Archives of Physical Medicine and Rehabilitation·T W JanssenA P Hollander
Feb 25, 1999·Arthritis Care and Research : the Official Journal of the Arthritis Health Professions Association·K LorigB A Laris
Aug 15, 2000·Research in Nursing & Health·M Sandelowski
Jan 6, 2001·Health Education Research·J H BarlowC C Wright
Oct 29, 2002·Patient Education and Counseling·Julie BarlowJenny Hainsworth
Jul 18, 2003·Annals of Behavioral Medicine : a Publication of the Society of Behavioral Medicine·Kate R Lorig, Halsted Holman
Mar 12, 2004·American Journal of Health Promotion : AJHP·Catherine A WarmsSteven A Stiens
Nov 10, 2004·Journal of Advanced Nursing·Tina KochDebbie Kralik
Dec 14, 2005·Family & Community Health·Alexa K Stuifbergen
Apr 28, 2007·Journal of Clinical Nursing·Lars-Eric OlssonInger Ekman
Jul 6, 2007·Health Services Research·Judith H HibbardMartin Tusler
Jul 27, 2007·Disability and Rehabilitation·Thilo KrollPei-Shu Ho
Aug 19, 2009·BMC Musculoskeletal Disorders·Maria E H LarssonIngbritt Ohrn
Dec 17, 2009·Research in Nursing & Health·Margarete Sandelowski
Jan 12, 2010·Patient Education and Counseling·Asa AudulvKarl-Gustaf Norbergh
Jul 16, 2010·Disability and Health Journal·Alexa K StuifbergenStephanie Morgan
Oct 6, 2010·Disability and Rehabilitation·Robert C HirschePatricia Manns
Sep 10, 2011·Disability and Rehabilitation·Michelle PloughmanMark Stefanelli

❮ Previous
Next ❯

Citations

Nov 7, 2019·JBI Database of Systematic Reviews and Implementation Reports·Sonti PilusaJoanne Potterton
May 15, 2020·Disability and Rehabilitation·Stephanie KılınçJoanne Cole
Dec 29, 2018·Hispanic Health Care International : the Official Journal of the National Association of Hispanic Nurses·Robert J LuceroJose A Luchsinger
Feb 14, 2019·The Journal of Spinal Cord Medicine·Alexander PortoKathy Zebracki
Jun 28, 2019·Frontiers in Cellular Neuroscience·Hiroyuki KatohMichael G Fehlings
Feb 26, 2020·Topics in Spinal Cord Injury Rehabilitation·Amanda McIntyreDalton L Wolfe
May 21, 2017·PM & R : the Journal of Injury, Function, and Rehabilitation·Argyrios StampasMichael W O'Dell
Oct 31, 2020·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Marjolein van RooijenAlbine Moser
Apr 29, 2021·Neural Regeneration Research·Elliot H ChoiMichael Y Oh
Aug 24, 2021·HSS Journal : the Musculoskeletal Journal of Hospital for Special Surgery·Eric ZhuChristopher J Dy
Nov 16, 2021·The Journal of Spinal Cord Medicine·Jill I Cameron
Feb 23, 2019·Archives of Physical Medicine and Rehabilitation·Carolyn M MurrayMandy Stanley

❮ Previous
Next ❯

Software Mentioned

NVivo

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.