Meaningful activity for persons with dementia: family caregiver perspectives

American Journal of Alzheimer's Disease and Other Dementias
Kaitlyn P Roland, Neena L Chappell

Abstract

Dementia threatens the capacity to engage in activity, suggesting meaningful activity may be helpful for persons with dementia (PWDs). This study explores the concept of meaningful activity, as defined by caregivers of PWDs. Family caregivers of PWDs, who provide 3 hours of care over 3 days/week, were interviewed after 6 months of cholinesterase inhibitors (ChEIs) therapy. Caregiver responses (N = 906) to the open-ended question What do you believe getting involved in activities outside the home means for someone with dementia are assessed. The themes are analyzed in terms of content, frequency, co-occurrence, and dementia severity. Caregivers emphasize the benefits of social connectedness, physical health, and mental stimulation. Activity is also viewed as respite, difficult, and has no meaning for care recipient. The implications of activity for self- and social-identity in PWD and caregiver are discussed. The benefits of activity varied by stage of disease. This knowledge indicates areas for improved activity provision and health care support.

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Citations

Apr 29, 2016·Journal of Nursing Scholarship : an Official Publication of Sigma Theta Tau International Honor Society of Nursing·Yvonne Yueh-Feng LuJoan E Haase
Jul 16, 2016·Revista da Escola de Enfermagem da U S P·Barbara Alana VizzachiAna Lúcia de Moraes Horta
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Sep 26, 2019·Qualitative Health Research·Linda BirtFiona Poland
Feb 6, 2020·International Journal of Older People Nursing·Laura Tierney, Elizabeth Beattie
Dec 4, 2019·Neuroscience Bulletin·UNKNOWN Academy of Cognitive Disorders of China (ACDC)Yuying Zhou
Dec 7, 2019·Journal of Christian Nursing : a Quarterly Publication of Nurses Christian Fellowship·Morgan Yordy, Julie Hare
Aug 11, 2020·Scandinavian Journal of Occupational Therapy·Kamilla KielsgaardHanne Kaae Kristensen
Mar 23, 2017·The Gerontologist·Christine JuangFlorence Clark
Jun 7, 2018·The Gerontologist·Courtney A PolenickHelen C Kales
Aug 28, 2019·Journal of the American Association of Nurse Practitioners·Natalie MartinezDaiWai M Olson
Jun 3, 2021·International Journal of Older People Nursing·Katherine StrickRuth Garside

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