Measuring the Quality of Data Collection in a Large Observational Cohort of HIV and AIDS.

The Open AIDS Journal
Mariska HillebregtColette Smit

Abstract

The aim of this study was to examine the quality of data collection by studying the validity of collected data. Data were extracted from the clinic charts of two anonymous outpatients by 38 data collectors. A standard for the data to be collected was determined (168 items). The validity was measured by comparing the collected items with the standard; in this way, the percentages of the collected items that were 'correct' could be calculated. The percentage 'correct' was higher for clinic chart 1 (mean: 83% correct, SD 7%) than for clinic chart 2 (mean: 78% correct, SD 8%). All categories contained incorrectly collected data. These data were divided into missing data, incorrect start-stop dates, and surplus collected data. Almost all start-stop dates would change into 'correct' if 'monthyear' was considered correct (instead of the standard 'daymonthyear'). Not all data collectors used specific protocols, and sources other than the written comments were not always checked. This study shows that a high proportion of data was correctly collected. However, the collection of start-stop dates was not optimal, and the collected data included surplus and missing data. Data collectors should be more knowledgeable about HIV disease and tr...Continue Reading

References

Jun 1, 1990·Computers and Biomedical Research, an International Journal·J P Mullooly
Jun 16, 2000·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·G FavalliS Pecorelli
May 2, 2002·Nursing Research·Linda E Moody, Susan McMillan
May 22, 2004·Applied Nursing Research : ANR·Joanne Kraenzle Schneider, Aporn Deenan
Apr 19, 2005·Journal of Neurology, Neurosurgery, and Psychiatry·J A FreemanA J Thompson
Jan 26, 2007·The Journal of Molecular Diagnostics : JMD·Matthew J McGinnissBeryl Crossley
Feb 20, 2008·Clinical Trials : Journal of the Society for Clinical Trials·Colin BaigentDouglas G Altman
May 7, 2010·Therapeutic Drug Monitoring·David M Burger

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Citations

Mar 20, 2015·Frontiers in Genetics·Judith KorbJürgen Liebig
Jun 12, 2012·PLoS Pathogens·Hermine MohrZsolt Ruzsics
Jan 2, 2013·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Ieva Salmane-Kulikovska, Signe Mezinska
Sep 4, 2013·Immunotherapy·Veijo Hukkanen, Michaela Nygårdas
Sep 27, 2018·BMJ Open·Tamara Sonia BoenderUNKNOWN ATHENA national observational HIV cohort

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Software Mentioned

SAS
Oracle Clinical ® ( OC )

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