MIRACUM: Medical Informatics in Research and Care in University Medicine

Methods of Information in Medicine
Hans-Ulrich ProkoschH Storf

Abstract

This article is part of the Focus Theme of Methods of Information in Medicine on the German Medical Informatics Initiative. Similar to other large international data sharing networks (e.g. OHDSI, PCORnet, eMerge, RD-Connect) MIRACUM is a consortium of academic and hospital partners as well as one industrial partner in eight German cities which have joined forces to create interoperable data integration centres (DIC) and make data within those DIC available for innovative new IT solutions in patient care and medical research. Sharing data shall be supported by common interoperable tools and services, in order to leverage the power of such data for biomedical discovery and moving towards a learning health system. This paper aims at illustrating the major building blocks and concepts which MIRACUM will apply to achieve this goal. Besides establishing an efficient governance structure within the MIRACUM consortium (based on the steering board, a central administrative office, the general MIRACUM assembly, six working groups and the international scientific advisory board), defining DIC governance rules and data sharing policies, as well as establishing (at each MIRACUM DIC site, but also for MIRACUM in total) use and access committ...Continue Reading

Citations

Nov 30, 2018·Clinical Chemistry and Laboratory Medicine : CCLM·Thomas Ganslandt, Michael Neumaier
Sep 16, 2018·Journal of Translational Medicine·Martin BialkeWolfgang Hoffmann
Oct 4, 2019·Briefings in Bioinformatics·Meik KunzThomas Dandekar
Feb 14, 2021·Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz·Anna TrimbornBettina Lange
Feb 2, 2021·Frontiers in Public Health·Lorenz A KapsnerHans-Ulrich Prokosch
Sep 18, 2020·BMC Medical Informatics and Decision Making·Jannik SchaafMartin Sedlmayr
Apr 5, 2021·BMC Medical Research Methodology·Stefan LenzHarald Binder
Jan 8, 2022·Strahlentherapie und Onkologie : Organ der Deutschen Röntgengesellschaft ... [et al]·Daniel MedenwaldUNKNOWN our MII research group

❮ Previous
Next ❯

Software Mentioned

BioSHaRE
COSMIC
MIRACUM
VMware
XNAT
MDR
OMOP PostgreSQL
JIRA
tranSMART
MIRACULIX

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Methods of Information in Medicine
Fabian PrasserKlaus A Kuhn
Methods of Information in Medicine
Sebastian C SemlerRalf Heyder
Methods of Information in Medicine
Stefanie Gehring, René Eulenfeld
Methods of Information in Medicine
Alfred WinterMarkus Löffler
Methods of Information in Medicine
Reinhold Haux
© 2022 Meta ULC. All rights reserved