Motivational factors for participation in biomedical research: evidence from a qualitative study of biomedical research participation in Blantyre district, Malawi

Journal of Empirical Research on Human Research Ethics : JERHRE
Joseph Mfutso-BengoFrancis Masiye

Abstract

Obtaining effective informed consent from research participants is a prerequisite to the conduct of an ethically sound research. Yet it is believed that obtaining quality informed consent is generally difficult in settings with low socioeconomic status. This is so because of the alleged undue inducements and therapeutic misconception among participants. However, there is a dearth of data on factors that motivate research participants to take part in research. Hence, this study was aimed at filling this gap in the Malawian context. We conducted 18 focus group discussions with community members in urban and rural communities of Blantyre in Malawi. Most participants reported that they accepted the invitation to participate in research because of better quality treatment during study also known as ancillary care, monetary and material incentives given to participants, and thorough medical diagnosis.

References

Feb 28, 2001·The New England Journal of Medicine·N LynöeL Ekström
Feb 21, 2004·The Journal of Infectious Diseases·Ezekiel J EmanuelChristine Grady
Mar 3, 2004·Social Science & Medicine·Charles W LidzMichelle Renaud
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Jan 11, 2013·BMC Public Health·Solange A NappoZila M Sanchez
Mar 12, 2013·Journal of Medical Ethics·Maulik Sumantbhai DoshiUrmila Mukund Thatte

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Citations

Dec 20, 2018·Tropical Medicine & International Health : TM & IH·Joyce L BrowneRieke van der Graaf
Mar 15, 2019·Journal of Empirical Research on Human Research Ethics : JERHRE·Lucinda Manda-TaylorKristan Elwell
Jan 24, 2019·Wellcome Open Research·Stephen B GordonUNKNOWN Malawi Research Ethics Workshop 2018 Participants
Nov 29, 2017·Journal of Empirical Research on Human Research Ethics : JERHRE·Claire Leonie WardBernice Elger
May 29, 2020·AIDS Research and Therapy·Kristen SullivanAnne Drapkin Lyerly

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