Multiple sclerosis: patients' information sources and needs on disease symptoms and management.

Patient Preference and Adherence
Albert I MattiCelia S Chen

Abstract

To investigate the current information sources of patients with multiple sclerosis (MS) in the early stages of their disease and to identify patients' preferred source of information. The relative amounts of information from the different sources were also compared. Participants at a newly diagnosed information session organized by the Multiple Sclerosis Society of South Australia were invited to complete a questionnaire. Participants were asked to rate on a visual analog scale how much information they had received about MS and optic neuritis from different information sources and how much information they would like to receive from each of the sources. A close to ideal amount of information is being provided by the MS society and MS specialist nurses. There is a clear deficit between what information patients are currently receiving and the amount of information they actually want from various sources. Patients wish to receive significantly more information from treating general practitioners, eye specialists, neurologists, and education sessions. Patients have identified less than adequate information received on optic neuritis from all sources. This study noted a clear information deficit regarding MS from all sources. This...Continue Reading

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Citations

Jun 15, 2013·Disability and Rehabilitation·Shane N SweetAmy E Latimer-Cheung
Nov 19, 2013·BMC Neurology·Lorena LoreficeEleonora Cocco
May 27, 2015·Multiple Sclerosis and Related Disorders·Peter RieckmannPatrick Vermersch
Dec 12, 2012·BMC Musculoskeletal Disorders·Roxanne CookseyStefan Siebert
Sep 25, 2016·Multiple Sclerosis : Clinical and Laboratory Research·Erica ColliganEzgi Tiryaki
Jul 2, 2015·The Canadian Journal of Neurological Sciences. Le Journal Canadien Des Sciences Neurologiques·Mathieu BrayJennifer Uniat
May 3, 2013·Journal of Medical Internet Research·Ruth Ann MarrieGary R Cutter
Sep 29, 2017·Interactive Journal of Medical Research·Luigi LavorgnaSimona Bonavita
Jul 21, 2016·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Yvonne C LearmonthRobert W Motl
Aug 6, 2014·Clinical Trials : Journal of the Society for Clinical Trials·Simona MaidaVittorio Martinelli
Apr 8, 2021·Patient Preference and Adherence·Mònica Andreu-MarchPilar Modamio

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