Narrative accounts of volunteers in palliative care settings

The American Journal of Hospice & Palliative Care
Manal Guirguis-Younger, Soti Grafanaki

Abstract

The long and evolving tradition of palliative care has always had a strong volunteer dimension. The difficult nature of palliative care invites questions around why volunteers choose this particular line of contribution. To expand our knowledge of the elements that create meaning and capture the essence of volunteer experience, we asked volunteers to share the rewards and the challenges of their work and its personal meaning. Significant themes emerged around what volunteers considered the most valuable aspects of their experience. Volunteers identified freedom of choice and the ability to use their natural gifts as an important condition for satisfaction. In addition, they perceived emotional resilience and personal hardiness as important dimensions of their suitability for working in palliative care. Finally, volunteers felt that their approach must be one of a balanced perspective, with an understanding of life and death as part of the human condition.

References

Jul 25, 1998·The Hospice Journal·C Sadler, F Marty
Jun 18, 2002·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Howard L McLeod
Apr 28, 2005·The American Journal of Hospice & Palliative Care·Stephen Claxton-OldfieldJane Claxton-Oldfield
Feb 3, 2006·Palliative Medicine·Birgit Andersson, Joakim Ohlén
Apr 6, 2006·Palliative & Supportive Care·Denise L Hawthorne, Nancy J Yurkovich
Apr 6, 2006·Palliative & Supportive Care·Manal Guirguis-YoungerMargaret McKee

❮ Previous
Next ❯

Citations

Jan 31, 2014·Journal of Palliative Medicine·Rachel BurbeckBridget Candy
Apr 29, 2014·Pain Practice : the Official Journal of World Institute of Pain·Kathrin WoithaKris Vissers
Apr 26, 2014·Palliative & Supportive Care·Sylvette DelaloyeChristine Cedraschi
Jun 6, 2014·Palliative & Supportive Care·Stephen Claxton-Oldfield
Aug 26, 2016·Indian Journal of Palliative Care·M A Muckaden, Sachi Sanjay Pandya
Jul 8, 2016·The Australian Journal of Rural Health·Dawn WhittallMargaret O'Connor
Mar 16, 2011·Palliative Medicine·Barbara A JackA Merriman
Feb 24, 2011·Qualitative Health Research·Wendy L LipworthStacy M Carter
Mar 30, 2018·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Steven DoddCatherine Walshe
May 25, 2018·International Journal of Palliative Nursing·Ros ScottGaye Manwaring
Jan 2, 2013·The American Journal of Hospice & Palliative Care·Barbara PesutMiranda Dalhuisen
Dec 21, 2019·The American Journal of Hospice & Palliative Care·Jiwon Lee, Jong-Eun Lee
May 12, 2021·Canadian Journal on Aging = La Revue Canadienne Du Vieillissement·Mary Jean HandeJanice Keefe

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.