Navigating the Transition from Advanced Illness to Bereavement: How Provider Communication Informs Family-related Roles and Needs.

Journal of Social Work in End-of-life & Palliative Care
Jacqueline M McGinley, Deborah P Waldrop

Abstract

Person-centered, family-oriented services are integral to palliative and end-of-life care. Effective communication with providers informs the quality of the dying experience for patients and how families fare in bereavement. This paper reports findings from a study exploring how communication and care in the later stages of an advanced illness influence family caregivers' well-being in bereavement. A concurrent triangulation design was used to analyze data collected during semi-structured interviews with 108 recently bereaved caregivers from a single hospice agency in Western New York. Findings from this study suggest that family caregivers assume the role of interpreter and advocate while engaged in both formal and informal communication with health care providers at the end of care-recipients' lives. Findings also suggest that families are more likely to feel emotionally prepared for loss and grief when health care providers are available to communicate in a concise, consistent, and compassionate manner. The results illuminate the important connection between communication during the transition from late-stage illness to end-of-life care and preparation for bereavement. The paper concludes with a discussion of how findings fr...Continue Reading

References

Nov 5, 2002·The Gerontologist·Linda K George
Nov 14, 2003·The New England Journal of Medicine·Richard SchulzUNKNOWN Resources for Enhancing Alzheimer's Caregiver Health Investigators
Jan 8, 2004·JAMA : the Journal of the American Medical Association·Joan M TenoVincent Mor
Dec 9, 2004·Psychology and Aging·Kathrin BoernerAmy Horowitz
May 25, 2005·Journal of Epidemiology and Community Health·Bengt Lindström, Monica Eriksson
Nov 22, 2005·Palliative Medicine·Samar M AounPeter L Hudson
Feb 17, 2007·Journal of the American Geriatrics Society·Joan M TenoTerrie Wetle
Oct 24, 2007·Journal of Pain and Symptom Management·Anna MilbergMaria Friedrichsen
Dec 11, 2007·Lancet·Margaret StroebeWolfgang Stroebe
Dec 12, 2007·Journal of Social Work in End-of-life & Palliative Care·Kathy Black
Jun 4, 2008·Critical Care Medicine·Mark D SiegelHolly G Prigerson
Oct 9, 2008·JAMA : the Journal of the American Medical Association·Alexi A WrightHolly G Prigerson
Mar 11, 2009·Archives of Internal Medicine·Baohui ZhangHolly G Prigerson
Jul 3, 2009·The American Journal of Hospice & Palliative Care·Steven RadwanySudy Jahangiri
Jul 17, 2010·General Hospital Psychiatry·Tomer T LevinDavid W Kissane
Oct 1, 2010·Current Opinion in Supportive and Palliative Care·Bee WeeGail Eva
Oct 6, 2011·JAMA : the Journal of the American Medical Association·Lauren Hersch NicholasDavid R Weir
May 9, 2012·Japanese Journal of Clinical Oncology·Mayumi IshidaYosuke Uchitomi
Nov 13, 2012·Nursing Outlook·Deborah P Waldrop, Mary Ann Meeker
Feb 27, 2013·Journal of Hospital Medicine : an Official Publication of the Society of Hospital Medicine·Stacy FischerJean Kutner
Mar 22, 2014·Palliative Medicine·Arianne Brinkman-StoppelenburgAgnes van der Heide
Jun 13, 2015·American Journal of Public Health·John MoriartyMark McCann
Dec 15, 2015·Journal of Social Work in End-of-life & Palliative Care·Jessica Russell
May 5, 2016·Journal of Social Work in End-of-life & Palliative Care·Devyani ChandranCasey Shillam
Jun 28, 2016·The Gerontologist·Cynthia A Hovland-Scafe, Betty J Kramer
Oct 27, 2016·Current Opinion in Supportive and Palliative Care·Verónica Inés Veloso, Vilma Adriana Tripodoro
Jul 12, 2017·BMC Palliative Care·Chong-Wen WangAmy Y M Chow
Sep 12, 2018·Journal of Pain and Symptom Management·Myra GlajchenRussell K Portenoy
Aug 28, 2017·Innovation in Aging·Deborah Carr, Elizabeth A Luth
Apr 19, 2019·Journal of Social Work in End-of-life & Palliative Care·Cynthia A Hovland, Betty J Kramer
May 28, 2019·International Journal of Nursing Studies·Yvonne N BecquéErica Witkamp

❮ Previous
Next ❯

Methods Mentioned

BETA
biopsy

Software Mentioned

Atlas
ti

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

The British Journal of General Practice : the Journal of the Royal College of General Practitioners
C K Brown
The British Journal of General Practice : the Journal of the Royal College of General Practitioners
R Woof, Y Carter
© 2022 Meta ULC. All rights reserved