Need for a roadmap for development of a coordinated national registry programme

Internal Medicine Journal
S WilkinsS M Evans

Abstract

Clinical quality registries are an overlooked and under-funded arm of clinical research in Australia. Registries are databases for patients with a particular disease, or who undergo a procedure, or use a health resource. Registries, where properly funded and universally adopted, have provided substantial benefits to the quality of healthcare and, in some cases, have had demonstrable effect in reducing costs. There is a lack of a coordinated programme for both funding and development of registries in Australia. A coordinated effort is required to address key gaps in registry coverage and ensure registries comply with appropriate technical and operating principles, and target areas where registries can add value to the health system. This will ensure that Australia is competitive with its international peers in this dynamic environment.

References

Apr 28, 2006·Journal of General Internal Medicine·Benjamin Littenberg, Charles D MacLean
Dec 17, 2008·Lancet Neurology
Oct 9, 2009·Internal Medicine Journal·S M EvansJ McNeil
Mar 6, 2010·The Medical Journal of Australia·John J McNeilPeter A Cameron
Dec 15, 2010·The New England Journal of Medicine·Michael E Porter
Apr 8, 2011·The Medical Journal of Australia·Sue M EvansJohn J McNeil
Feb 20, 2013·The Medical Journal of Australia·Sue M EvansPeter A Cameron

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Citations

Jun 14, 2018·Internal Medicine Journal·Susannah AhernScott C Bell
Feb 9, 2018·Australian Health Review : a Publication of the Australian Hospital Association·Susannah AhernJohn Zalcberg
Oct 20, 2018·Journal of the Royal Society, Interface·Kerry L M WongLenka Benova
Jun 4, 2017·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·Karolina KrysinskaHenry Brodaty

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