PMID: 8957952Nov 1, 1996Paper

Needs of disabled children and their families

Archives of Disease in Childhood
J MilnerD M Hall

Abstract

In the new NHS those who provide services for disabled children need to measure and demonstrate their effectiveness, but there are no easily available outcome measures for use by child development centres and teams. The development of an alternative approach, using a series of statements of good practice, is described. Parents of children with cerebral palsy were asked to participate in semistructured interviews, to ascertain the value and relevance of these quality statements. Parents were most concerned about the standard of news breaking and early follow up, the sharing of information, and the supply and repair of equipment. The findings were used to modify the quality checklist and it is proposed that this should form the basis of a "charter for disabled children and their families'.

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Citations

Jan 25, 2005·The British Journal of Ophthalmology·J S RahiG Lewando Hundt
Sep 30, 2008·Disability and Rehabilitation·Channah NieuwenhuijsenHenk J Stam
Apr 10, 2012·European Journal of Paediatric Neurology : EJPN : Official Journal of the European Paediatric Neurology Society·Antigone S PapavasiliouIoanna Rizou
Aug 22, 2006·Child: Care, Health and Development·H McConachie, G Robinson
Jun 29, 2012·Paediatric Anaesthesia·Jan-H SchiffAndreas Walther
Aug 20, 2010·Palliative Medicine·Fiona WoodRichard Hain
Mar 3, 2006·Journal of Developmental and Behavioral Pediatrics : JDBP·Jo Wray, Linda Maynard

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