Negotiating knowledge: parents' experience of the neuropsychiatric diagnostic process for children with autism

International Journal of Language & Communication Disorders
Emilia CarlssonKatja Laakso

Abstract

Parents often recognize problems in their child's development earlier than health professionals do and there is new emphasis on the importance of involving parents in the diagnostic process. In Gothenburg, Sweden, over 100 children were identified as having an autism spectrum disorder (ASD) in 2009-11 through a general population language and autism screening of 2.5 year olds at the city's child healthcare centres. To increase understanding of parents' lived experience of the neuropsychiatric diagnostic process, i.e. the period from the initial screening at age 2.5 years to the 2-year follow-up of the ASD diagnosis. A qualitative design, a phenomenological hermeneutic method, was used. Interviews were conducted with parents of 11 children who were diagnosed with ASD 2 years prior. The parents were interviewed about their experiences of the neuropsychiatric diagnostic process, i.e. the time before the screening, the time during the neuropsychiatric multidisciplinary evaluation and the time after diagnosis. The interviews lasted for 45-130 min, and an interview guide with set questions was used. Most of the interviews were conducted at the parents' homes. The essence that emerged from the data was negotiating knowledge, and the t...Continue Reading

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Citations

May 3, 2019·Autism : the International Journal of Research and Practice·Marisa ViljoenPetrus J de Vries
Mar 26, 2019·Journal of Developmental and Behavioral Pediatrics : JDBP·Christina SakaiKaren M Freund
Sep 12, 2019·Autism : the International Journal of Research and Practice·Stephen J GentlesPeter Szatmari
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Sep 2, 2021·Journal of Autism and Developmental Disorders·Michelle I J SnijderIris J Oosterling
Nov 9, 2021·Journal of Autism and Developmental Disorders·Jennifer HaMegan E Golson

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