Neuro-QOL: brief measures of health-related quality of life for clinical research in neurology.

Neurology
D CellaC Moy

Abstract

To address the need for brief, reliable, valid, and standardized quality of life (QOL) assessment applicable across neurologic conditions. Drawing from larger calibrated item banks, we developed short measures (8-9 items each) of 13 different QOL domains across physical, mental, and social health and evaluated their validity and reliability. Three samples were utilized during short form development: general population (Internet-based, n = 2,113); clinical panel (Internet-based, n = 553); and clinical outpatient (clinic-based, n = 581). All short forms are expressed as T scores with a mean of 50 and SD of 10. Internal consistency (Cronbach α) of the 13 short forms ranged from 0.85 to 0.97. Correlations between short form and full-length item bank scores ranged from 0.88 to 0.99 (0.82-0.96 after removing common items from banks). Online respondents were asked whether they had any of 19 different chronic health conditions, and whether or not those reported conditions interfered with ability to function normally. All short forms, across physical, mental, and social health, were able to separate people who reported no health condition from those who reported 1-2 or 3 or more. In addition, scores on all 13 domains were worse for peop...Continue Reading

References

Sep 13, 2005·Epilepsy Research·Maurizio A LeonePaola Mosconi
Apr 3, 2007·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·David CellaSeung Choi
May 23, 2007·Movement Disorders : Official Journal of the Movement Disorder Society·Brenda L Den OudstenJolanda De Vries
May 29, 2007·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Chih-Hung Chang
Jan 12, 2008·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·Lori PerezDavid Cella
Aug 30, 2008·Amyotrophic Lateral Sclerosis : Official Publication of the World Federation of Neurology Research Group on Motor Neuron Diseases·Joanna EptonCrispin Jenkinson
Sep 2, 2008·Journal of Rehabilitation Medicine·Elizabeth B LynchDavid Cella
Nov 4, 2008·Annual Review of Clinical Psychology·Steven P Reise, Niels G Waller
Apr 28, 2009·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Deepa RaoDavid Cella
Jun 17, 2010·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Ron D HaysRichard Gershon
Aug 30, 2011·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Richard C GershonDavid Cella
Oct 14, 2011·Archives of Physical Medicine and Rehabilitation·David CellaClaudia Moy

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Citations

Aug 30, 2011·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Richard C GershonDavid Cella
Jan 24, 2013·PloS One·William B YoungJoanna Kempner
Mar 28, 2013·Multiple Sclerosis International·Karine BaumstarckPascal Auquier
Oct 10, 2013·American Journal of Respiratory and Critical Care Medicine·Andrew M NaidechE Wesley Ely
Dec 3, 2013·American Journal of Respiratory and Critical Care Medicine·Fred Rincon
Aug 19, 2015·Annals of Physical and Rehabilitation Medicine·Harvey Levin
Jan 8, 2016·Archives of Physical Medicine and Rehabilitation·Allan J KozlowskiAllen W Heinemann
Apr 12, 2015·Epilepsy & Behavior : E&B·Jin-Shei LaiDavid Cella
Feb 3, 2016·Archives of Physical Medicine and Rehabilitation·Sara J MorganBrian J Hafner
Nov 6, 2015·Neurology·Rajbeer S SanghaShyam Prabhakaran
Jun 23, 2015·American Journal of Physical Medicine & Rehabilitation·Thomas N BryceAllan J Kozlowski
Apr 5, 2014·Journal of Pain and Symptom Management·Jin-Shei LaiArthur Stone
Feb 26, 2015·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Pierre MichelLaurent Boyer
Jan 20, 2015·Archives of Physical Medicine and Rehabilitation·Abbey J HughesDawn M Ehde
Jan 24, 2015·Archives of Physical Medicine and Rehabilitation·Cheryl B McCullumsmithUNKNOWN PRISMS Investigators
May 16, 2015·Critical Care Medicine·Andrew M NaidechDavid Cella
Mar 31, 2015·Archives of Physical Medicine and Rehabilitation·Susan MagasiAllen W Heinemann
Dec 24, 2013·Epilepsy & Behavior : E&B·David VictorsonDavid Cella
Apr 4, 2013·Archives of Physical Medicine and Rehabilitation·Elizabeth E MarfeoElizabeth K Rasch
Sep 23, 2014·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·H CorreiaD Cella
Aug 26, 2014·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Karon F CookDeborah Miller
Feb 27, 2016·Movement Disorders : Official Journal of the Movement Disorder Society·Cindy J NowinskiDavid Cella
May 20, 2016·Movement Disorders : Official Journal of the Movement Disorder Society·Lisa M ShulmanPablo Martinez-Martin
Jun 28, 2016·Archives of Physical Medicine and Rehabilitation·Sarah K Hendred, Erin R Foster
Jul 17, 2016·Archives of Physical Medicine and Rehabilitation·Jin-Shei LaiAllen W Heinemann
Feb 5, 2014·Multiple Sclerosis : Clinical and Laboratory Research·Christoph Heesen, Jeffrey A Cohen
Aug 5, 2015·Multiple Sclerosis : Clinical and Laboratory Research·Deborah M MillerDavid Cella
Jan 2, 2015·Therapeutic Advances in Chronic Disease·Saad JavedRayaz A Malik
Jul 7, 2015·PloS One·Alarcos CiezaUNKNOWN PARADISE Consortium
Mar 21, 2018·Otolaryngology--head and Neck Surgery : Official Journal of American Academy of Otolaryngology-Head and Neck Surgery·Tanya EadieEduardo Méndez

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