Sep 15, 2007

Neurodevelopmental disabilities and quality of life after intensive care treatment

Journal of Paediatrics and Child Health
Julije MestrovicJaksa Zanchi

Abstract

To analyze the quality of life after Pediatric Intensive Care Unit (PICU) treatment and compare the differences between quality of life in children who suffer chronic health conditions, and those who do not, post discharge from PICU. Quality of life was assessed using the Royal Alexandra Hospital for Children (RAHC) Measure of Function which incorporates measures of domains that delineate severity or impact of disease symptoms, physical disability, mobility, emotional distress, behavior, deviation from normal growth and development, impairment in social rules, and performance at school and in leisure activities. Families of 371 children were contacted for RAHC Measure of Function scoring. The results showed that the majority of children with no chronic condition (88.8%), as well as those with a chronic condition other than neurodevelopmental disability (81.6%) had minimal ongoing health problems and good quality of life. Only 21.4% of children with neurodevelopmental disabilities fell into this category, 39.3% had poor quality of life and 39.3% had fair quality of life. The results suggest that the majority of patients discharged from the PICU go on to have a good quality of life. The quality of life of patients with other chro...Continue Reading

  • References14
  • Citations9

References

  • References14
  • Citations9

Citations

Mentioned in this Paper

Pediatric Intensive Care Unit
Physical Disability
Myopathy
Hospital Mortality
Alexandra
Specialty Type - Intensive Care
Anhedonia
Quality of Life
Picus
Nervous System Disorder

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