"Never at ease" - family carers within integrated palliative care: a multinational, mixed method study

BMC Palliative Care
Gülay AteşLukas Radbruch

Abstract

Family carers manage a wide range of responsibilities in the lives and care of patients receiving palliative care. They fulfil multiple roles and perform activities within different settings. This has immediate consequences on family carers' every-day lives. According to literature, family carers in palliative care are both part of the formal and informal care network, but also persons in need of support. This article aims to investigate 1) burdens and rewards associated with family caregiving and 2) what family carers find helpful in their contact with professionals from integrated palliative care initiatives (IPC-i) and other services. Family carers looking after patients with cancer, chronic obstructive pulmonary disease or chronic heart failure were purposefully recruited at 22 IPC-i in Belgium, Germany, Hungary, the Netherlands and the United Kingdom in the course of the project "Patient-centred palliative care pathways in advanced cancer and chronic disease" (InSup-C). Semi-structured interviews (n = 156) and 87 quantitative questionnaires (CRA, POS, CANHELP Lite) were conducted with family carers. Interviews were analysed with transnationally agreed thematic codes (MAXQDA or NVivo). Statistical tests (SPSS) were carried ...Continue Reading

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Oct 26, 2018·International Journal of Palliative Nursing·Amanda HendersonClaudia Virdun
Nov 27, 2019·Health & Social Care in the Community·Michele PetersRay Fitzpatrick
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Nov 18, 2021·Scandinavian Journal of Caring Sciences·Romy Mahrer-ImhofMarie-Louise Luttik
Nov 17, 2020·International Journal of Nursing Sciences·Zhu LiuJie Tan

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Software Mentioned

CANHELP
MAXQDA
NVivo
SPSS Package for the Social Sciences
InSup

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