New voices in women's health: perceptions of women with intellectual and developmental disabilities

Intellectual and Developmental Disabilities
Allison A Brown, Carol J Gill

Abstract

This study explored aging and health experiences and concerns of women with intellectual and developmental disabilities, using a participatory approach that captured the direct reports of the women, in their own words and from their own perspectives. The results of a qualitative analysis of 6 focus groups, composed of 34 women with intellectual and developmental disabilities, Age 30 years and older are reported. The focus groups addressed health knowledge, body awareness,developmental and age-related changes, life satisfaction, health behaviors, health service experiences, and perceptions of disability. Findings indicated that the women held misconceptions and limited knowledge regarding health and aging. The results are discussed in relation to disability, women's health, and social support issues, including recommendations for health professionals and care providers.

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Citations

Mar 16, 2011·Annals of Family Medicine·Joanne E WilkinsonBarbara G Bokhour
Jun 27, 2012·Intellectual and Developmental Disabilities·Joanne WilkinsonBarbara Bokhour
Sep 12, 2015·Journal of Intellectual Disability Research : JIDR·H K BrownV Cobigo
Jun 13, 2012·Maturitas·Anthea InnesKaren Watchman
Mar 1, 2012·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Irene Tuffrey-WijneAmanda Cresswell
Dec 30, 2015·Journal of Intellectual Disability Research : JIDR·M Patka, A Murry
Sep 15, 2012·Journal of Intellectual Disability Research : JIDR·J WilkinsonB Bokhour
Jan 30, 2013·Journal of Intellectual Disability Research : JIDR·L FindlayK Scior
Jun 26, 2013·Journal of Intellectual Disability Research : JIDR·J G SwaineP Dickens
Mar 31, 2016·Intellectual and Developmental Disabilities·Hailee M GibbonsTamar Heller
Jan 21, 2014·Health & Social Work·Jamie G SwaineKaren Luken
Feb 2, 2018·Intellectual and Developmental Disabilities·Susan L ParishLeah Igdalsky
Nov 14, 2018·American Journal on Intellectual and Developmental Disabilities·Natasha PlourdeVirginie Cobigo
Mar 20, 2019·Journal of General Internal Medicine·Nicole AgaronnikLisa I Iezzoni

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