No evidence synthesis about me without me: Involving young people in the conduct and dissemination of a complex evidence synthesis.

Health Expectations : an International Journal of Public Participation in Health Care and Health Policy
Erin WalkerJo Thompson Coon

Abstract

To describe and reflect on the methods and influence of involvement of young people with lived experience within a complex evidence synthesis. Linked syntheses of quantitative and qualitative systematic reviews of evidence about interventions to improve the mental health of children and young people (CYP) with long-term physical conditions (LTCs). Involvement was led by an experienced patient and public involvement in research lead. Young people with long-term physical conditions and mental health issues were invited to join a study-specific Children and Young People's Advisory Group (CYPAG). The CYPAG met face to face on four occasions during the project with individuals continuing to contribute to dissemination following report submission. Eight young people joined the CYPAG. Their views and experiences informed (a) a systematic review evaluating the effectiveness of interventions intended to improve the mental health of CYP with LTCs, (b) a systematic review exploring the experiences of interventions intended to improve the mental well-being of CYP with LTCs and (c) an overarching synthesis. The CYPAG greatly contributed to the team's understanding and appreciation of the wider context of the research. The young people found...Continue Reading

References

Mar 7, 2012·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Julia KreisKay Dickersin
Apr 28, 2012·BMJ : British Medical Journal·Allyson M PollockSylvia Godden
Jul 20, 2012·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Jo BrettRashida Suleman
Dec 6, 2012·Nursing & Health Sciences·Amanda Kenny, Ann Allenby
Nov 9, 2019·Research Involvement and Engagement·Rachel FlynnShannon D Scott
Nov 30, 2019·British Journal of Nursing : BJN·Claire Camara

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