No question too small: development of a question prompt list for parents of critically ill infants

Journal of Perinatology : Official Journal of the California Perinatal Association
Monica E LemmonRenee D Boss

Abstract

To develop a question prompt list tailored to the needs of parents of critically ill infants at risk of neurodevelopmental impairment. Question content was derived from audio-recorded neonatal intensive care unit family meetings and interviews with parents of infants treated with therapeutic hypothermia. Question content was refined using clinician focus groups. Acceptability testing was performed with parents and clinicians caring for infants in the neonatal intensive care unit. All clinicians and parents found the QPL content acceptable. Parents universally endorsed that the question prompt list was useful to them and would help them prepare for a meeting with their infant's healthcare team. This question prompt list, designed for parents of critically ill infants, is acceptable to parents and clinicians, and can be used in the acute neonatal course to facilitate parent engagement in family meetings.

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Aug 5, 2016·Pediatrics·Monica E LemmonRenee D Boss

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Citations

May 30, 2019·Journal of Child Neurology·Monica E LemmonPeter A Ubel
Jan 8, 2020·Developmental Medicine and Child Neurology·Rebecca A DornerMonica E Lemmon
Jul 16, 2019·Advances in Neonatal Care : Official Journal of the National Association of Neonatal Nurses·Sue L HallJenene Craig
Aug 25, 2020·Cardiology in the Young·Kathryn NeubauerRenee D Boss
Jan 18, 2021·American Journal of Perinatology·Rebecca A DornerMonica E Lemmon
Jun 20, 2021·The Journal of Pediatrics·Terrie E InderJoseph J Volpe
Jun 30, 2019·Pediatrics·Monica E LemmonDebra Brandon

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