Obscuring effect of coding developmental disability as the underlying cause of death on mortality trends for adults with developmental disability: a cross-sectional study using US Mortality Data from 2012 to 2016

BMJ Open
S D LandesMargaret A Turk

Abstract

To determine whether coding a developmental disability as the underlying cause of death obscures mortality trends of adults with developmental disability. National Vital Statistics System 2012-2016 US Multiple Cause-of-Death Mortality files. USA. Adults with a developmental disability indicated on their death certificate aged 18 through 103 at the time of death. The study population included 33 154 adults who died between 1 January 2012 and 31 December 2016. Decedents with a developmental disability coded as the underlying cause of death on the death certificate were identified using the International Statistical Classification of Diseases and Related Health Problems, Tenth Revision code for intellectual disability, cerebral palsy, Down syndrome or other developmental disability. Death certificates that coded a developmental disability as the underlying cause of death were revised using a sequential underlying cause of death revision process. There were 33 154 decedents with developmental disability: 7901 with intellectual disability, 11 895 with cerebral palsy, 9114 with Down syndrome, 2479 with other developmental disabilities and 1765 with multiple developmental disabilities. Among all decedents, 48.5% had a developmental di...Continue Reading

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Citations

Mar 22, 2019·Developmental Medicine and Child Neurology·Scott D Landes
Apr 6, 2019·Journal of Community Health·Amy L KruegerDavid W Purcell
Jun 28, 2019·The Journal of Rural Health : Official Journal of the American Rural Health Association and the National Rural Health Care Association·Anna Hansen, Mairead Moloney
Jul 18, 2019·Journal of Intellectual Disability Research : JIDR·S D LandesM A Turk
Oct 11, 2019·Canadian Journal of Public Health = Revue Canadienne De Santé Publique·Emilie BeaulieuIan Pike
Jan 7, 2020·Developmental Medicine and Child Neurology·Jennifer M RyanMark D Peterson
Jun 17, 2020·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·Heather M SnyderMichael S Rafii
Jul 28, 2020·The American Journal of Bioethics : AJOB·Maya SabatelloKatherine E McDonald
Oct 13, 2020·Journal of Intellectual Disability Research : JIDR·S D LandesM A Turk
Jan 30, 2021·Preventive Medicine Reports·J Dalton Stevens, Scott D Landes
Oct 6, 2021·Journal of Intellectual Disability Research : JIDR·A R WalkerP Srasuebkul

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