Obstacles to community participation among youth with spinal cord injury.

The Journal of Spinal Cord Medicine
Julie GorzkowskiLawrence C Vogel

Abstract

Examine caregiver-report of obstacles to community participation for youth with spinal cord injury (SCI), and explore relationships between obstacles and child, caregiver, and community characteristics. Two hundred and one primary caregivers of youth with SCI ages 7-17 years were interviewed at three pediatric SCI centers within a single-hospital system. Caregivers answered an open-ended question assessing obstacles to youth participation. A mixed-methods approach was incorporated, where qualitative methods analyzed caregiver-reported obstacles, and exploratory multivariate analyses examined relationships between obstacles and demographic variables. Caregivers were primarily mothers (74%), married (69%), employed (54%), had college experience (67%), and lived in small towns (55%). Youths' mean age was 12.60 years at interview and 7.19 years at injury, 70% had paraplegia, and 55% had complete injuries. Analyses revealed that youth participation was limited by obstacles across six domains: community, disability-related, practical concerns, child-internal, social, and other. Child, caregiver, and community characteristics were related to overall report of obstacles, and report of community obstacles, disability-related obstacl...Continue Reading

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Citations

Sep 10, 2013·Academic Pediatrics·Karen AlbrightAllison Kempe
Apr 4, 2015·Child's Nervous System : ChNS : Official Journal of the International Society for Pediatric Neurosurgery·Sagrario Pérez-de la CruzAngel Gil-Agudo
Jan 27, 2015·Journal of Pediatric Psychology·Heather F RussellLawrence C Vogel
May 16, 2019·The Journal of Spinal Cord Medicine·Anne L RivelliLawrence C Vogel
Aug 24, 2018·The South African Journal of Physiotherapy·Linda van der WesthuizenTshifhiwa M Nkwenika

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