Occupational balance among family members of people in palliative care

Scandinavian Journal of Occupational Therapy
Sofia Nissmark, Agneta Malmgren Fänge

Abstract

Today people can live a long time with a chronic cancer diagnosis, and it affects the entire family. Family members to patients in palliative care often have to leave valued occupations due to lack of time and energy, while new roles are forced upon them, potentially affecting their health. To explore occupational balance, needs and roles among family members to persons in palliative care. Six semi-structured interviews were conducted with family members to terminally ill persons enrolled to specialized palliative care. A qualitative content analysis guided the data collection and analysis. An overarching theme Striving for control while being in the disease, and two categories Changing roles and occupations in the family; and Handling emotions in the end of life emerged from the data. The findings suggest that family members could benefit from strategies to maintain valued roles and occupations, and that palliative care provision need to develop new ways to take family members needs into consideration.

References

Oct 9, 1993·BMJ : British Medical Journal·G Thorpe
Jan 5, 2000·BMJ : British Medical Journal·N Mays, C Pope
Nov 15, 2000·Western Journal of Nursing Research·A EmamiS L Ekman
Aug 23, 2002·Scandinavian Journal of Caring Sciences·Agneta Wennman-Larsen, Carol Tishelman
Nov 19, 2003·Journal of Palliative Medicine·Anna MilbergSusanne Börjesson
Feb 26, 2004·European Journal of Cancer Care·G Brobäck, C Berterö
Jan 24, 2007·Journal of Clinical Nursing·Joakim OhlénKerstin Segesten
Jun 15, 2007·QJM : Monthly Journal of the Association of Physicians·S Workman, O E Mann
Jan 6, 2009·Journal of Advanced Nursing·Berit MunckJan Mårtensson
Jul 1, 2006·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·Gordon K Wilcock
Aug 5, 2010·Qualitative Health Research·Petra WagmanTorbjörn Falkmer
May 19, 2011·Health & Social Care in the Community·Sharon KeesingBeverley McNamara
Jul 26, 2011·Scandinavian Journal of Occupational Therapy·Petra WagmanAnita Björklund
Oct 18, 2012·Scandinavian Journal of Caring Sciences·Ewa Kazimiera AnderssonAnia Willman
Feb 8, 2014·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Denise F Polit
May 3, 2014·Scandinavian Journal of Occupational Therapy·Kiah L EvansSonya J Girdler

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

© 2022 Meta ULC. All rights reserved