Older care-home residents as collaborators or advisors in research: a systematic review

Age and Ageing
Tamara BackhouseAnne Killett

Abstract

patient and public involvement (PPI) in research can enhance its relevance. Older care-home residents are often not involved in research processes even when studies are care-home focused. to conduct a systematic review to find out to what extent and how older care-home residents have been involved in research as collaborators or advisors. a systematic literature search of 12 databases, covering the period from 1990 to September 2014 was conducted. A lateral search was also carried out. Standardised inclusion criteria were used and checked independently by two researchers. nineteen reports and papers were identified relating to 11 different studies. Care-home residents had been involved in the research process in multiple ways. Two key themes were identified: (i) the differences in residents' involvement in small-scale and large-scale studies and (ii) the barriers to and facilitators of involvement. small-scale studies involved residents as collaborators in participatory action research, whereas larger studies involved residents as consultants in advisory roles. There are multiple facilitators of and barriers to involving residents as PPI members. The reporting of PPI varies. While it is difficult to evaluate the impact of invol...Continue Reading

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Citations

Jan 12, 2017·Dementia·Clarissa GiebelUNKNOWN Members of the HoST-D (Home Support in Dementia) Programme Management Group and Patient Public and Carer Involvement Groups
Jun 26, 2018·Scandinavian Journal of Occupational Therapy·Margarita MondacaLena Rosenberg
Oct 31, 2018·Dementia·Jennifer BethellKatherine S McGilton
Jan 31, 2020·International Journal of Older People Nursing·Marie O'NeillLiz Laird
Jun 11, 2020·Research Involvement and Engagement·Aukelien ScheffelaarKatrien Luijkx
Sep 22, 2017·Journal of Health Organization and Management·Martin KitchenerSimon Cooper
Jan 8, 2020·Gerontology & Geriatric Medicine·Susanne IwarssonSteven Schmidt
Feb 12, 2019·Aging & Mental Health·Margarita MondacaLena Rosenberg
Jun 16, 2019·BMC Health Services Research·Aukelien ScheffelaarSandra van Dulmen
Feb 6, 2019·International Journal of Environmental Research and Public Health·Maria Giné-GarrigaDawn A Skelton
May 13, 2020·International Journal of Older People Nursing·Briony JainSioban O'Farrell-Pearce
Apr 27, 2019·Geriatrics·Alexandra M Johnstone, Alison I C Donaldson
Apr 25, 2020·International Journal of Environmental Research and Public Health·Maria Giné-GarrigaDawn A Skelton
Jan 8, 2019·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Ebony T LewisMagnolia Cardona
Jan 14, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Albine MoserKon-Siong Jie
Aug 31, 2020·Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen·Kim Isabel RathjenAnsgar Gerhardus
Mar 12, 2021·Scandinavian Journal of Caring Sciences·Karina SchjødtAnnesofie Lunde Jensen
Jun 5, 2021·Research Involvement and Engagement·Troels Kjærskov HansenMerete Gregersen
Aug 8, 2021·International Journal of Environmental Research and Public Health·Barbara GrootTineke Abma

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