Ongoing ostomy self-care challenges of long-term rectal cancer survivors

Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer
Joanna E BulkleyRobert S Krouse

Abstract

Surgical treatment for rectal cancer (RC) can result in an intestinal ostomy that requires lifelong adaptation and investment of physical, cognitive, and financial resources. However, little is known about the extent of ongoing challenges related to ostomy self-care among long-term RC survivors. We analyzed the prevalence of self-reported ostomy self-care challenges and the physical and environmental factors that can support or undermine ostomy self-care. We mailed surveys to long-term (≥ 5 years post-diagnosis) RC survivors, including 177 adults with ostomies who were members of integrated health systems in northern California, Oregon, and Washington State. Potential participants were identified through tumor registries. Data were also extracted from electronic health records. The response rate was 65%. The majority of respondents were male (67%), and the mean age was 75 years. Sixty-three percent of respondents reported at least one ostomy self-care challenge. The most common challenges were leakage or skin problems around the ostomy and needing to change the pouching system too frequently. Twenty-two percent reported difficulty caring for their ostomy. Younger age and higher BMI were consistently related to ostomy self-care ...Continue Reading

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Citations

Nov 14, 2019·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Virginia SunRobert S Krouse
Nov 19, 2019·Journal of Wound, Ostomy, and Continence Nursing : Official Publication of the Wound, Ostomy and Continence Nurses Society·Janice C ColwellSarah James-Reid
Aug 29, 2020·Psychology, Health & Medicine·Jessica Noemí Acevedo-IbarraSergio Buenaventura-Cisneros
May 14, 2020·Revista latino-americana de enfermagem·Julliana Fernandes de SenaIsabelle Katherinne Fernandes Costa
Aug 28, 2020·Journal of Advanced Nursing·Vittoria GiordanoGiulia Villa
Jan 9, 2021·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Virginia SunBetty Ferrell
Feb 26, 2021·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Le Jian HeJun E Zhang
May 13, 2021·Advances in Skin & Wound Care·Pelin Basim, Derya Argun
Jul 13, 2021·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Joanna E BulkleyHeather Spencer Feigelson
Aug 27, 2021·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Marcia GrantRobert S Krouse
Aug 24, 2021·Revista da Escola de Enfermagem da U S P·Iraktânia Vitorino DinizMaria Júlia Guimarães Oliveira Soares
Dec 10, 2021·British Journal of Community Nursing·Eugenia Rodriguez GonzálezEduardo García Blázquez

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