Online genetic counseling from the providers' perspective: counselors' evaluations and a time and cost analysis

European Journal of Human Genetics : EJHG
Ellen OttenIrene M Van Langen

Abstract

Telemedicine applications are increasingly being introduced in patient care in various disciplines, including clinical genetics, mainly to increase access to care and to reduce time and costs for patients and professionals. Most telegenetics reports describe applications in large geographical areas, showing positive patients' and professionals' satisfaction. One economic analysis published thus far reported lower costs than in-person care. We hypothesized that telegenetics can also be beneficial from the professional's view in relatively small geographical areas. We performed a pilot study in the Northern Netherlands of 51 home-based online counseling sessions for cardiogenetic and oncogenetic cascade screening, and urgent prenatal counseling. Previously, we showed patient satisfaction, anxiety, and perceived control of online counseling to be comparable to in-person counseling. This study focuses on expectations, satisfaction, and practical evaluations of the involved counselors, and the impact in terms of time and costs. Most counselors expected disadvantages of online counseling for themselves and their patients, mainly concerning insufficient non-verbal communication; few expected advantages for themselves. Afterwards, coun...Continue Reading

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Citations

May 6, 2016·Frontiers in Cardiovascular Medicine·Amy C Sturm
Jan 25, 2018·Journal of Genetic Counseling·Heather A ZierhutJill Davies
Jan 9, 2019·Journal of Community Genetics·Rebecka PestoffCecilia Gunnarsson
Feb 27, 2019·Telemedicine Journal and E-health : the Official Journal of the American Telemedicine Association·Aishwarya ArjunanCarrie Haverty
Mar 3, 2019·Journal of Genetic Counseling·Alissa B TerryJoann Bodurtha
Mar 22, 2019·Current Pharmaceutical Design·Wilfried GyselaersAsma Khalil
Sep 21, 2019·Journal of Genetic Counseling·Andrew S ThagardMonica A Lutgendorf
Sep 29, 2017·Clinical Obstetrics and Gynecology·Sarah M TemkinLori Minasian
Feb 20, 2019·European Journal of Human Genetics : EJHG·Priya T BholaGail E Graham
Dec 6, 2017·Journal of Genetic Counseling·Scott M WeissmanDeborah Wham
Jun 25, 2020·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Nick DragojlovicLarry D Lynd
Oct 21, 2020·Circulation. Genomic and Precision Medicine·Lieke M van den HeuvelImke Christiaans
Jan 21, 2021·Journal of Telemedicine and Telecare·Alison M ElliottJan M Friedman
Apr 8, 2021·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Elizabeth G BrownImran Rafi
Jul 22, 2021·International Journal of Neonatal Screening·Jessica I GoldCan Ficicioglu
Aug 7, 2021·Journal of Genetic Counseling·Noelle R DanylchukJennifer Malinowski
Dec 19, 2018·Mayo Clinic Proceedings. Innovations, Quality & Outcomes·Janet E OlsonJames R Cerhan

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