Online health community experiences of sexual minority women with cancer

Journal of the American Medical Informatics Association : JAMIA
Young Ji LeeUlrike Boehmer

Abstract

The study sought to explore online health communities (OHCs) for sexual minority women (SMW) with cancer by conducting computational text analysis on posts. Eight moderated OHCs were hosted by the National LGBT Cancer Network from 2013 to 2015. Forty-six SMW wrote a total of 885 posts across the OHCs, which were analyzed using Linguistic Inquiry and Word Count and latent Dirichlet allocation. Pearson correlation was calculated between Linguistic Inquiry and Word Count word categories and participant engagement in the OHCs. Latent Dirichlet allocation was used to derive main topics. Participants (average age 46 years; 89% white/non-Hispanic) who used more sadness, female-reference, drives, and religion-related words were more likely to post in the OHCs. Ten topics emerged: coping, holidays and vacation, cancer diagnosis and treatment, structure of day-to-day life, self-care, loved ones, physical recovery, support systems, body image, and symptom management. Coping was the most common topic; symptom management was the least common topic. Highly engaged SMW in the OHCs connected to others via their shared female gender identity. Topics discussed in these OHCs were similar to OHCs for heterosexual women, and sexual identity was not...Continue Reading

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Citations

Aug 15, 2019·Journal of the American Medical Informatics Association : JAMIA·Tiffany C VeinotSuzanne Bakken
Aug 22, 2020·Yearbook of Medical Informatics·Ashley C GriffinArlene E Chung
Jul 2, 2021·BMJ Health & Care Informatics·Paul FairieMaria J Santana
Jul 26, 2021·Journal of Vascular Surgery·Catherine Go, Ulka Sachdev

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