Opening the doors a crack wider: palliative care research data in the public domain

BMJ Supportive & Palliative Care
Olav LindqvistOPCARE9 team in Sweden

Abstract

This report builds further on OPCARE9, an EU 7th framework project aiming to identify knowledge gaps in care provision in the last days of life. This study began with curiosity about new ways of generating research questions to meet future challenges in palliative care (PC) and how to better engage disciplines not generally included in PC research. We here describe an innovative methodological approach to generating data; put data relevant for PC research in the public domain; and raise issues about open access in PC research. We aimed to compile research questions from different disciplines, based on raw data consisting of approximately 1000 descriptions of non-pharmacological caregiving activities (NPCAs), generated through previous research. 53 researchers from different fields were sent the full list of NPCAs and asked to generate research questions from their disciplinary perspective. Responses were received from 32 researchers from 9 countries, generating approximately 170 research topics, questions, reflections and ideas, from a wide variety of perspectives, which are presented here. Through these data, issues related to death and dying are addressed in several ways, in line with a new public health approach. By engaging...Continue Reading

References

Jan 1, 1987·Bulletin of the Pan American Health Organization
Jun 27, 2007·Journal of Palliative Medicine·Vyjeyanthi S Periyakoil
Mar 10, 2010·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Carol TishelmanMirjam A G Sprangers
Mar 8, 2012·JAMA : the Journal of the American Medical Association·Mary E Tinetti
Sep 1, 2012·BMJ Supportive & Palliative Care·Dorothy Elizabeth Logie, Richard Harding

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