Pain burden in desmoid tumor patients: a survey of the French Advocacy Group SOS Desmoid

Bulletin du cancer
Philippe Rigaux“SOS Desmoïde”

Abstract

The French Patient Advocacy Group SOS Desmoid conducted a survey to measure the pain burden of desmoid tumor patients. We used a structured questionnaire to measure the occurrence and consequences of pain. The pain occurrence was approximately 63%. In one-third of the cases, the pain was permanent. This pain led to severe social and economic consequences. The occurrence of pain and its consequences are underestimated among these patients. Pain needs to be closely and precisely measured and monitored in future clinical trials to assess the efficacy of proposed treatments better.

References

Aug 31, 2010·Acta Oncologica·Anastasia ConstantinidouIan Judson
Apr 12, 2011·The Oncologist·Bernd KasperPeter Hohenberger
Jul 7, 2012·Modern Pathology : an Official Journal of the United States and Canadian Academy of Pathology, Inc·Sophie Le GuellecJean-Michel Coindre
Sep 12, 2012·Annals of Surgical Oncology·John T MullenFrancis J Hornicek

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Citations

Oct 17, 2015·Expert Review of Anticancer Therapy·Mushriq Al-JazraweBenjamin Alman
Mar 15, 2016·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Nicolas PenelJean-Yves Blay
Dec 25, 2016·Bulletin du cancer·Nicolas Penel
Sep 19, 2019·Annals of Surgical Oncology·Winan J van HoudtWinette T A van der Graaf
Nov 30, 2019·Psycho-oncology·Katrina M IngleyAbha A Gupta

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