Pain management for children with cerebral palsy in school settings in two cultures: action and reaction approaches

Disability and Rehabilitation
Margareta AdolfssonStefan Nilsson

Abstract

Children with cerebral palsy (CP) face particular challenges, e.g. daily pain that threaten their participation in school activities. This study focuses on how teachers, personal assistants, and clinicians in two countries with different cultural prerequisites, Sweden and South Africa, manage the pain of children in school settings. Participants' statements collected in focus groups were analysed using a directed qualitative content analysis framed by a Frequency of attendance-Intensity of involvement model, which was modified into a Knowing-Doing model. Findings indicated that pain management focused more on children's attendance in the classroom than on their involvement, and a difference between countries in terms of action-versus-reaction approaches. Swedish participants reported action strategies to prevent pain whereas South African participants primarily discussed interventions when observing a child in pain. Differences might be due to school- and healthcare systems. To provide effective support when children with CP are in pain in school settings, an action-and-reaction approach would be optimal and the use of alternative and augmentative communication strategies would help to communicate children's pain. As prevention...Continue Reading

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Citations

Dec 12, 2019·African Journal of Disability·Ensa JohnsonMargareta Adolfsson
May 7, 2020·Acta Paediatrica·Cecilie Schmidt ØstergaardKirsten Nordbye-Nielsen

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