Pain Prevalence, Characteristics, and Impact Among People with Hemophilia: Findings from the First Portuguese Survey and Implications for Pain Management.

Pain Medicine : the Official Journal of the American Academy of Pain Medicine
Patrícia Ribeiro PintoArmando Almeida

Abstract

Hemophilia is a rare disorder characterized by spontaneous bleeding, with pain being a critical aspect. However, a systematic assessment of hemophilia-related pain in Portugal has never been conducted. To understand the pain experience among Portuguese people with hemophilia (PWH) by describing its prevalence, characteristics, and impact and uncovering intervention needs in the realm of hemophilia-related pain care. A cross-sectional observational survey, with age-adapted versions of questions concerning pain, emotional distress, and quality of life, was answered by 104 adults, 21 children/teenagers (10-17 years), and 19 children (1-9 years). Pain was reported by 82 (78.8%) adults, 16 (76.2%) children/teenagers, and 13 (68.4%) children, with 65 (62.5%), 13 (61.9%), and eight (42.1%) of them reporting pain lasting more than three months, respectively. The mean number of pain locations (SD) was 5.23 (3.95) for adults, 4.13 (3.48) for children/teenagers, and 3.15 (1.99) for children age 1-9 years, with lower limbs pain causing the greatest negative impact. More frequent pain-triggering factors were physical effort/movements (61, 74.4%) for adults and hemarthrosis for younger groups (children/teenagers: 14, 87.5%; children: 9, 69.2...Continue Reading

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Citations

May 5, 2021·The Journal of Pain : Official Journal of the American Pain Society·Ana Cristina ParedesPatrícia Ribeiro Pinto
May 28, 2021·Expert Review of Hematology·E Carlos Rodriguez-Merchan, Hortensia De la Corte-Rodriguez
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Dec 9, 2021·Haemophilia : the Official Journal of the World Federation of Hemophilia·Roberto Ucero-LozanoRubén Cuesta-Barriuso

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