Palliative Care for Movement Disorders

Current Treatment Options in Neurology
Christina L Vaughan, Benzi Kluger

Abstract

While care for patients with movement disorders has traditionally focused on motor symptoms, there is increasing evidence that optimal care for these disorders is more complex both in terms of the spectrum of symptoms experienced by patients (e.g., pain, depression) and the multidimensional needs of patients and their families. Palliative care is an approach to the care of patients and families affected by serious illnesses that seeks to relieve suffering by addressing complex medical symptoms, psychosocial issues, spiritual well-being, and goals of care. While traditionally associated with cancer and hospice, more recent work in palliative care has focused on integrating a palliative care approach from the time of diagnosis for patients with chronic illnesses, including movement disorders. Studies of patients with movement disorders and their family caregivers suggest that these patients have significant unmet needs under current models of care, including underrecognition and treatment of non-motor symptoms, inadequate psychosocial support, and suboptimal end-of-life care. We describe how a palliative care approach can empower clinicians, patients, and families to reduce common sources of suffering and optimize quality of life...Continue Reading

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Citations

Jul 12, 2018·British Journal of Hospital Medicine·Daniel E Lumsden
Jan 29, 2021·Current Neurology and Neuroscience Reports·Zachary A MacchiBenzi M Kluger
Aug 21, 2021·International Journal of Qualitative Studies on Health and Well-being·Supreet Kaur Bhasin, Ishita U Bharadwaj

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