Palliative care in Swiss pediatric oncology settings: a retrospective analysis of medical records

Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer
Michael RostTenzin Wangmo

Abstract

This study examined the provision of palliative care and related decision-making in Swiss pediatric oncology settings. The aim was to determine if and when children who died from cancer received palliative care, whether there were differences by cancer diagnosis, and inclusion of children in decision-making regarding palliative care. Using a standardized data extraction form, a retrospective review of medical records of deceased pediatric patients was conducted. The form captured information on demographics, diagnosis, relapse(s), treatments, decision-making during palliative care, and circumstances surrounding a child's death. For 170 patients, there was information on whether the child received palliative care. Among those, 38 cases (22%) did not receive palliative care. For 16 patients, palliative care began at diagnosis. The mean duration of palliative care was 145 days (Mdn = 89.5, SD = 183.4). Decision to begin palliative care was discussed solely with parent(s) in 60.9% of the cases. In 39.1%, the child was involved. These children were 13.6 years of age (SD = 4.6), whereas those not included were 7.16 years old (SD = 3.9). Leukemia patients were less likely to receive palliative care than the overall sample, and patient...Continue Reading

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Citations

Sep 4, 2019·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Michael RostBernice Elger
Jul 13, 2019·BMC Palliative Care·Eva De ClercqBernice S Elger
Oct 16, 2019·Pediatric Blood & Cancer·Brian T Cheng, Tenzin Wangmo
Dec 14, 2018·Cancer Medicine·Brian T ChengTenzin Wangmo
Apr 14, 2021·Medicine, Health Care, and Philosophy·Michael Rost, Emilian Mihailov

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