Parent-Child Agreement on Health-Related Quality of Life in Congenital Glaucoma

Translational Vision Science & Technology
Vijaya K GothwalAnil K Mandal

Abstract

We assess parent-child agreement regarding child's health-related quality of life (HRQoL) in children operated for congenital glaucoma (CG). A total of 121 children aged 8 to 18 years (mean age, 11.8 years) operated for CG (mean duration since surgery, 10.2 years) and their parents (mean age, 36.5 years) completed the child and parent versions of the Kidscreen-27 questionnaire, respectively. Psychometric properties of Kidscreen-27 were assessed using Rasch analysis, and child-parent agreement regarding child's HRQoL was investigated using the Bland-Altman limits of agreement (LoA) method. Minor modifications in the rating scale and deletion of few misfitting items resulted in a psychometrically robust Kidscreen-23 questionnaire. Average parental HRQoL score was higher than the child's own ratings, with a significant difference between their scores (mean ± standard deviation [SD] difference = 0.53 ± 2.58 logits, P = 0.02; lower LoA [95% CI], -4.52 [-5.31 to -3.72] and upper LoA [95% CI], 5.58 [4.79-6.38]). The range of child-parent agreement was wide and bidirectional, with parents tending to underestimate and overestimate their child's HRQoL. Younger children and girls showed greater discordance in their HRQoL with parental rep...Continue Reading

References

May 1, 1989·Archives of Disease in Childhood·W Franks, D Taylor
Jan 1, 1980·Ophthalmologica. Journal international d'ophtalmologie. International journal of ophthalmology. Zeitschrift für Augenheilkunde·J François
May 1, 1981·American Journal of Ophthalmology·W L Broughton, M M Parks
Dec 1, 1981·American Journal of Ophthalmology·K S MorganE M Helveston
Apr 1, 1980·Ophthalmology·S D McPherson, D McFarland
Aug 6, 1998·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·N C TheunissenJ M Wit
Feb 19, 2000·International Journal of Cancer. Supplement = Journal International Du Cancer. Supplement·R B Levi, D Drotar
Mar 21, 2000·PharmacoEconomics·M A Connolly, J A Johnson
Nov 25, 2000·Child: Care, Health and Development·G H VerripsS P Verloove-Vanhorick
Feb 24, 2001·Archives of Disease in Childhood·C Eiser, R Morse
Mar 23, 2001·Health Technology Assessment : HTA·C Eiser, R Morse
Jan 5, 2002·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·C Eiser, R Morse
Aug 30, 2002·Optometry and Vision Science : Official Publication of the American Academy of Optometry·Robert W Massof
Oct 3, 2003·Ophthalmology·Anil K MandalTarannum Mansoori
Dec 12, 2003·Community Dentistry and Oral Epidemiology·Aleksandra JokovicGordon Guyatt
May 17, 2005·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·M G SawyerP A Baghurst
May 12, 2006·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Karine Toupin AprilCiarán M Duffy
Sep 20, 2006·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·Stéphane RobitailUNKNOWN European Kidscreen Group
Oct 25, 2006·Medical Care·Robert F DeVellis
Apr 11, 2007·Journal of Clinical Epidemiology·Stéphane RobitailUNKNOWN KIDSCREEN Group
Apr 20, 2007·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Jeanne A Teresi, John A Fleishman
Aug 2, 2007·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Ulrike Ravens-SiebererUNKNOWN European KIDSCREEN Group
Aug 19, 2007·Optometry and Vision Science : Official Publication of the American Academy of Optometry·Konrad PesudovsDavid B Elliott
Jun 4, 2008·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Penney UptonChristine Eiser
Oct 7, 2008·Journal of Clinical Epidemiology·I-Chan HuangDennis A Revicki
Apr 14, 2009·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Paulo R SantosLigia R Kerr
Aug 18, 2009·Investigative Ophthalmology & Visual Science·Vijaya K GothwalKonrad Pesudovs
Aug 9, 2011·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Susan K ParsonsPamela S Hinds
May 21, 2013·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Ulrike Ravens-SiebererFionna Klasen
Jun 22, 2013·Health and Quality of Life Outcomes·Luis RajmilJordi Alonso

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Software Mentioned

MedCalc
Statistical Package for Social Sciences
Kidscreen
Winsteps

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