Parent moral distress in serious pediatric illness: A dimensional analysis

Nursing Ethics
Kim Mooney-Doyle, Connie M Ulrich

Abstract

Moral distress is an important and well-studied phenomenon among nurses and other healthcare providers, yet the conceptualization of parental moral distress remains unclear. The objective of this dimensional analysis was to describe the nature of family moral distress in serious pediatric illness. A dimensional analysis of articles retrieved from a librarian-assisted systematic review of Scopus, CINAHL, and PsychInfo was conducted, focusing on how children, parents, other family members, and healthcare providers describe parental moral distress, both explicitly through writings on parental moral experience and implicitly through writings on parental involvement in distressing aspects of the child's serious illness. To promote child and family best interest and minimize harm, a nuanced understanding of the moral, existential, emotional, and spiritual impact of serious pediatric illness is needed. The cases used in this dimensional analysis come from the first author's IRB approved study at the Children's Hospital of Philadelphia and subsequent published studies; or have been adapted from the literature and the authors' clinical experiences. Three dimensions emerged from the literature surrounding parent moral distress: an intrap...Continue Reading

References

Feb 3, 2000·The New England Journal of Medicine·J WolfeJ C Weeks
Apr 20, 2007·Journal of Perinatology : Official Journal of the California Perinatal Association·C L BrosigS R Leuthner
Jun 28, 2007·JAMA : the Journal of the American Medical Association·Chris FeudtnerTammy I Kang
Apr 1, 2008·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Joanne WolfeJane C Weeks
May 20, 2008·Seminars in Fetal & Neonatal Medicine·Ian A Laing, Yvonne Freer
Dec 6, 2008·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Annie Janvier
May 7, 2009·Journal of Palliative Medicine·Kelly Nicole MichelsonJoel Frader
Jun 3, 2009·Archives of Pediatrics & Adolescent Medicine·Jennifer W MackJane C Weeks
Aug 12, 2009·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Ulla Forinder, Annika Lindahl Norberg
Sep 9, 2009·Archives of Pediatrics & Adolescent Medicine·Renee D BossRobert M Arnold
Oct 7, 2009·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Pamela S HindsWayne L Furman
Feb 20, 2010·The Hastings Center Report·Connie M UlrichChristine Grady
Mar 24, 2010·Pediatrics·Betty DaviesKimberley Widger
May 1, 2010·European Journal of Obstetrics, Gynecology, and Reproductive Biology·M A EinaudiC Gire
Sep 8, 2010·Journal of Pediatric Nursing·Joanne M YoungblutTheophile Niyonsenga
Jan 12, 2011·Clinical Child and Family Psychology Review·Kristin A Long, Anna L Marsland
Feb 12, 2011·The Journal of Perinatal & Neonatal Nursing·Joan L RosenbaumReverend Zollfrank
Feb 22, 2011·Journal of Pain and Symptom Management·Yutaka HatanoKenji Fukui
Mar 10, 2011·Journal of Palliative Medicine·Caprice KnappElizabeth Shenkman
Apr 19, 2011·Journal of Palliative Medicine·George FitchettJennifer Misasi
May 18, 2011·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·Maureen E LyonRobert McCarter
Mar 1, 2012·The Journal of Pediatrics·Eirik M HagenThor Willy Ruud Hansen
Mar 7, 2012·Pediatrics·Sadeth SayeedJohn D Lantos
May 2, 2012·Journal of Health Care Chaplaincy·Kathryn A LyndesErin Flanagan
Jul 4, 2012·Archives of Pediatrics & Adolescent Medicine·Catherine A Humikowski
Jul 25, 2012·Critical Care Medicine·Vanessa N MadrigalChris Feudtner
Sep 29, 2012·Journal of Pain and Symptom Management·Michael D RuppeWynne E Morrison
Oct 30, 2012·Journal of Religion and Health·Maureen E LyonLawrence J D'Angelo
Dec 20, 2012·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Kelly Nicole MichelsonJoel Frader
Jan 24, 2013·JAMA : the Journal of the American Medical Association·Jane BrockUNKNOWN Care Transitions Project Team
Aug 7, 2013·Palliative & Supportive Care·Julianne HarrisonRick Harrison
Nov 26, 2013·International Journal of Palliative Nursing·Jinjiao Wang, Joan A Kearney
Mar 4, 2014·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Tessie W OctoberPamela S Hinds
Oct 3, 2014·Pediatrics·Daniel Groll
Nov 25, 2014·JAMA Pediatrics·Chris FeudtnerPamela S Hinds
Apr 8, 2015·Pediatrics·Junne KamiharaJennifer W Mack
Apr 8, 2015·Pediatrics·Armand H Matheny AntommariaJohn D Lantos
Apr 29, 2015·Paediatrics & Child Health·Harold Siden, Rose Steele
Jun 11, 2015·Nursing for Women's Health·Melanie Chichester, Charlotte Wool

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