Parental and child perspectives on adaptation to childhood chronic illness: a qualitative study

Clinical Child Psychology and Psychiatry
Anne F Gannoni, Rosalyn H Shute

Abstract

This qualitative study aimed to gain an in-depth understanding of the adaptation of children and families to childhood chronic illness. Considering ecological theories and child empowerment, we departed from the usual practice of relying solely on parental report by also soliciting children's views. Eighteen children aged 7-14 with cancer, chronic renal failure or type 1 diabetes, and 21 of their parents, participated. The inclusion of several conditions enabled the examination of data from a categorical versus non-categorical perspective. Focus groups supplemented by individual interviews explored participants' views about challenges and the processes they considered important in enhancing adaptation to a chronic illness. Children, as well as parents, provided rich material. Thematic analysis revealed 11 main themes. Six concerned the impact of the illness on various aspects of life. The other main themes were the meaning of disease, stress-processing, social support, future concerns and psychosocial interventions. There were many similarities and some differences between parent and child reports. Many issues were common across illness groups, consistent with a non-categorical approach, though there were some illness-specific ...Continue Reading

References

Apr 1, 1992·Journal of Pediatric Psychology·J V Lavigne, J Faier-Routman
Apr 1, 1986·ANS. Advances in Nursing Science·M Sandelowski
Dec 1, 1988·Journal of Pediatric Psychology·A SpiritoC Williams
Apr 16, 1998·Journal of Child Psychology and Psychiatry, and Allied Disciplines·J L Wallander, J W Varni
May 20, 1998·Journal of Pediatric Psychology·B H Fiese, N L Bickham
Jun 26, 1998·Journal of Pediatric Psychology·J E Hoekstra-WeebersE C Klip
Jul 7, 1999·Journal of Developmental and Behavioral Pediatrics : JDBP·M A GartsteinR B Noll
Apr 26, 2000·Journal of Pediatric Psychology·E A Seagull
May 23, 2000·Journal of Pediatric Psychology·E SolidayM B Lande
Dec 1, 2001·Journal of Pediatric Psychology·Caroline M Heary, Eilis Hennessy
Jan 25, 2002·Clinical Psychology Review·Michael A Southam-Gerow, Philip C Kendall
Jun 30, 2007·Journal of Pediatric Psychology·Robert B Noll, Mary Jo Kupst
Aug 19, 2007·Journal of Pediatric Psychology·Sean Phipps

❮ Previous
Next ❯

Citations

May 3, 2011·Nursing Research·Marsha J TreadwellW Thomas Boyce
Mar 31, 2015·Issues in Comprehensive Pediatric Nursing·Sharon D Horner, Adama Brown
Feb 11, 2016·Child: Care, Health and Development·A M RitzemaD Nicholas
Apr 30, 2015·American Journal of Medical Genetics. Part a·Sheila ZwieseleAngela Trepanier
May 31, 2016·Epilepsy & Behavior : E&B·Jeni HardenRichard F M Chin
Jan 10, 2012·Journal of Family Nursing·Kathleen A KnaflNancy L Havill
Nov 26, 2013·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Emily IncledonHarriet Hiscock
Jul 16, 2013·Clinical Child Psychology and Psychiatry·Sylvia NguyenLisa Kettler
Feb 25, 2011·Western Journal of Nursing Research·Barbara Ellen Mawn
Mar 30, 2013·Western Journal of Nursing Research·Ying ZhangNanping Shen
Jul 22, 2017·Clinical Immunology : the Official Journal of the Clinical Immunology Society·Ben Shillitoe, Andrew Gennery
Jul 29, 2017·Clinical Child Psychology and Psychiatry·Clare ChiversMartha Deiros Collado
Feb 13, 2019·Holistic Nursing Practice·Crina CotocHillary Klonoff-Cohen
Apr 2, 2019·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·M Danielle Gunter, Gloria Duke
Jul 18, 2019·Nursing Forum·Katherine ZhengArlene Smaldone
Jan 8, 2014·Journal for Specialists in Pediatric Nursing : JSPN·Ying ZhangNanping Shen
Jan 18, 2012·Journal of Developmental and Behavioral Pediatrics : JDBP·Vincenzo Di CiommoGiovanna Cotugno
Jan 12, 2013·Journal of Clinical Nursing·Donna FreebornBarbara Mandleco
May 17, 2017·Global Qualitative Nursing Research·David B Nicholas
Oct 24, 2013·Child: Care, Health and Development·D Freeborn, K Knafl
Aug 31, 2013·Ciência & saúde coletiva·Selene Beviláqua Chaves Afonso, Rosa Maria de Araujo Mitre
May 5, 2016·Medicine, Health Care, and Philosophy·Rodrigo López BarredaNikola Biller-Andorno
Jul 2, 2019·The Canadian Journal of Nursing Research = Revue Canadienne De Recherche En Sciences Infirmières·Donna EppBarbara Astle
May 20, 2019·European Journal of Pediatrics·Lisa M VerberneJohannes J M van Delden
Aug 28, 2020·Epilepsy & Behavior : E&B·Suzanne M NevinElizabeth E Palmer
Feb 1, 2021·Orphanet Journal of Rare Diseases·Petra J MauritzMariët Hagedoorn

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.