Parental attitudes toward genetic testing for prelingual deafness in China

International Journal of Pediatric Otorhinolaryngology
Siqing FuGuanming Chen

Abstract

Recent advances in molecular biology of hearing and deafness have made genetic testing an option for deaf individuals and their families. In China, DNA microarray and other genetic testing method has been applied to rapid genetic diagnosis of non-syndromic hearing loss. However, there is no information about the interests in such testing in China. The purpose of this study is to document the attitudes of parents with normal hearing who have one or more deaf children toward diagnostic, carrier, and prenatal genetic testing for deafness. A structured, self-completion questionnaire was given to delegates at a conference held at Hubei Rehabilitation Research Center for Deaf Children, Wuhan, China on March 3, 2010. Of 366 surveys distributed, 290 were completed and returned. Ninety-four percent of the respondents had a positive attitude toward genetic testing. Seventy-two percent stated that they were interested in genetic testing of deaf child. Of the individuals who were interested in such testing, 69% would consider having prenatal genetic testing for deafness. The present study provided evidence of a predominantly positive attitude toward genetics. Appropriate genetic counseling can help parents to understand the risk, benefits,...Continue Reading

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Citations

Jul 23, 2011·International Journal of Pediatric Otorhinolaryngology·Guanming ChenJiashu Dong
Feb 18, 2011·International Journal of Pediatric Otorhinolaryngology·Guanming ChenSiqing Fu
Jun 3, 2016·Journal of Genetic Counseling·Frida Simonstein, Michal Mashiach-Eizenberg
Aug 20, 2016·American Journal of Medical Genetics. Part a·Jun Shen
Apr 7, 2011·Traffic Injury Prevention·R SolomonB Tinholt
Feb 21, 2019·Experimental and Therapeutic Medicine·Jian-Hua DengPei-Fang Zhang
May 26, 2017·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Mingyu HanPu Dai
Nov 20, 2020·Precision Clinical Medicine·Ryan K Thorpe, Richard J H Smith

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