Feb 5, 2009

Parental fears following their child's brain tumor diagnosis and treatment

Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses
M AnclairKrister Boman

Abstract

The objective of this study is to portray the illness-related threats experienced by parents of children after the diagnosis of central nervous system (CNS) tumor. Parents were asked to rate the extent to which they experienced a set of specific fears related to their child's brain tumor and its treatment. Outcomes for parents of CNS tumor patients (n = 82) were compared with those of reference parents of patients treated for acute lymphoblastic leukemia (n = 208). The fears about an illness recurrence and the late effects of treatment were most prominent among parents of CNS tumor patients. For 7 out of 11 kinds of fear, parents of CNS tumor patients expressed a stronger fear than the reference group. More than a quarter of the parents of children treated for CNS tumors feared a complete decline of the child. Parents of CNS tumor patients experience relatively heightened cancer related fears in several domains. The fear of devastating consequences felt by one fourth of parents signals the need of individualized psychological support and information at diagnosis and follow-up to facilitate parental coping with the posttreatment situation.

  • References25
  • Citations8

References

  • References25
  • Citations8

Citations

Mentioned in this Paper

Prevalence Studies
Late Effect of Medical Intervention
Recurrent Malignant Neoplasm
Fear (Mental Process)
Recurrence (Disease Attribute)
Step-parent
CNS Disorder
Brain Neoplasms
Acute Lymphocytic Leukemia
Brain Tumor, Recurrent

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