Parental information use in the context of newborn bloodspot screening. An exploratory mixed methods study.

Journal of Community Genetics
Stuart G Nicholls, Kevin W Southern

Abstract

The aim of this study was to investigate how parents select and use information sources when considering newborn bloodspot screening. Mixed methods approach using semi-structured interviews (n = 18) and a self-completion postal questionnaire (n = 154) conducted with parents of children who had undergone newborn bloodspot screening. Qualitative data was assessed using a thematic analysis approach with quantitative data analyzed using multinomial logistic regression. Parents used a limited range of information. In the UK, maternity services are largely delivered by the midwife and the healthcare practitioner was the main information source for parents, with only half of parents using official health service leaflets. Barriers included the provision of information post-natally and with other non-healthcare materials. Neither number of children, age group, education level, nor income were significantly associated with the number of information sources used. Nor were they associated with the information source indicated as most important. The midwife is well placed to act as a gatekeeper for parents seeking information about newborn bloodspot screening. Even when additional sources are used, the midwife remains a prominent source of...Continue Reading

References

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Apr 30, 2005·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Katrina M HargreavesSandy R Oliver
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Aug 18, 2012·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Makda H AraiaBeth K Potter

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Citations

Dec 4, 2013·Critical Reviews in Clinical Laboratory Sciences·Chloe Miu MakChing-Wan Lam
May 23, 2015·Applied Health Economics and Health Policy·Stuart J WrightFiona Ulph
Jul 1, 2015·BMC Medical Informatics and Decision Making·Sarah E LillieBrian J Zikmund-Fisher
Dec 23, 2015·CoDAS·Juliana Nogueira ChavesKátia de Freitas Alvarenga
Oct 3, 2017·Health Technology Assessment : HTA·Fiona UlphTina Lavender
Aug 1, 2014·Personalized Medicine·Stuart G NichollsJune C Carroll
Dec 17, 2018·Irish Journal of Medical Science·Patricia FitzpatrickBarry Linnane
Aug 18, 2012·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Makda H AraiaBeth K Potter
Oct 12, 2020·European Journal of Human Genetics : EJHG·Věra FrankováUNKNOWN Members of the European Society of Human Genetics (ESHG)-EuroGentest Quality Sub-Committee
Oct 20, 2020·International Journal of Neonatal Screening·Věra FrankováViktor Kožich

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