Parental perspectives on care for sleep in children with cerebral palsy: a wake-up call.

Disability and Rehabilitation
Raquel Y HulstOlaf Verschuren

Abstract

Sleep problems are common in children with cerebral palsy (CP) and have a large impact on child health and family functioning. This qualitative study aimed to explore parental perspectives regarding the care for sleep of their young child (age 1-8 years) with CP. Individual, semi-structured interviews were conducted with eighteen parents of a child with CP (GMFCS levels I-V). Inductive thematic analysis of the data was performed within each of the three preidentified domains: 1) Current situation; 2) Concerns; 3) Needs. In total, sixteen themes were identified across the three domains. Within the families' Current situation, parents expressed various issues concerning the care for sleep of their child both at night and during daytime, which are hampered by perceived deficiencies in healthcare, such as limited attention for sleep and lack of knowledge among health professionals. Themes within the Concerns and Needs domains encompassed experiences in the home environment relating to child, family and social aspects, while experiences in the healthcare setting included clinical practices and attitudes of healthcare professionals, as well as the broader organisation of care for sleep. Parents face numerous challenges caring for the...Continue Reading

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Citations

Jul 25, 2020·Child: Care, Health and Development·Raquel Y HulstOlaf Verschuren
Aug 28, 2020·Developmental Medicine and Child Neurology·Olaf VerschurenJan Willem Gorter
May 16, 2021·Developmental Medicine and Child Neurology·Raquel Y HulstOlaf Verschuren

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