Parental Preferences Regarding Outpatient Management of Children with Congenital Heart Disease

Pediatric Cardiology
Sarah K LuthyJimmy C Lu

Abstract

The objective of this study was to identify patterns of health care usage among children with congenital heart disease (CHD) and determine predictors for contacting cardiologists for routine care. Parents of children with CHD completed surveys, indicating which provider they would contact first for 12 concerns. Predictors for preference for cardiologist evaluation were identified by multivariable logistic regression. Surveys were completed by 307 of 925 (33.2%) parents. Median patient age was 9.4 years [interquartile range (IQR) 5.1-14.4 years] with a median of 1 cardiac surgery (IQR 1-3). Most parents agreed primary care physicians (PCPs) could identify problems related to CHD (70.0%) and when to refer to cardiologists (89.6%). More felt PCPs best understood their values (63.2 vs. 29.6%, P < 0.001) and were more accessible (63.5 vs. 33.6%, P < 0.001) than cardiologists. Parents preferred first evaluation by PCPs for 9 of 12 concerns. Preference for cardiology evaluation was independently associated with the number of cardiac catheterizations [adjusted odds ratio (AOR) for ≥2 catheterizations 2.4, 95% confidence interval (CI) 1.1-4.9], belief the cardiologist better knew the child's medical history (AOR 2.4, 95% CI 1.3-4.6), an...Continue Reading

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Citations

May 22, 2019·Congenital Heart Disease·Sonia A MonteiroLara Shekerdemian
Jun 27, 2019·Paediatrics & Child Health·Claudia Martinez-RiosAndrea S Doria
Jan 4, 2018·Journal of the Saudi Heart Association·Ahmad S AzharSara Taisir A Alsheblie

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