Parenting stress among parents of children with congenital diaphragmatic hernia

Pediatric Surgery International
Elin ÖstMaria Öjmyr-Joelsson

Abstract

The aim of this study was to examine parental stress among parents of children with congenital diaphragmatic hernia (CDH). Between 2005 and 2009, a total of 51 children with CDH were treated at Astrid Lindgren Children's Hospital. The survival rate at discharge was 86% and long-term survival rate 80%. One parent each of the long-term survivors (41 children) was included in the present study, and 34 parents (83%) agreed to participate. Participants received the Swedish Parenthood Stress Questionnaire (SPSQ). The questionnaire was supplemented by data from case records. Parents of children with CDH, who had been supported by ECMO or had a long hospital stay, showed significantly higher overall parental stress. Mothers scored an overall higher parental stress compared with fathers. A prenatal diagnosis of CDH or lower parental educational level resulted in significantly higher parental stress in some of the factors. Parental stress in parents of children with CDH seems to increase with the severity of the child's malformation. Mothers tend to score higher parental stress than fathers.

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Citations

Apr 27, 2019·Journal for Specialists in Pediatric Nursing : JSPN·Violet Petit-SteeghsJacqueline E W Broerse
Feb 28, 2020·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Jo WrayAparna Hoskote
Nov 20, 2018·Nursing Inquiry·Paulo Roberto Lima Falcão do ValeEvanilda Souza de Santana Carvalho
Feb 19, 2021·Prenatal Diagnosis·Francesca M RussoJan Deprest
Feb 27, 2021·Pediatric Pulmonology·Sahar Al BaroudiEric B Jelin
Mar 27, 2018·Soins. Pédiatrie, puériculture·Yohan Sorèze

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