Parents' Attitudes toward Clinical Genetic Testing for Autism Spectrum Disorder-Data from a Norwegian Sample

International Journal of Molecular Sciences
Jarle JohannessenOle A Andreassen

Abstract

Clinical genetic testing (CGT) of children with autism spectrum disorder (ASD) may have positive and negative effects. Knowledge about parents' attitudes is needed to ensure good involvement of caregivers, which is crucial for accurate diagnosis and effective clinical management. This study aimed to assess parents' attitudes toward CGT for ASD. Parent members of the Norwegian Autism Society were given a previously untested questionnaire and 1455 answered. Linear regression analyses were conducted to evaluate contribution of parent and child characteristics to attitude statements. Provided it could contribute to a casual explanation of their child's ASD, 76% would undergo CGT. If it would improve the possibilities for early interventions, 74% were positive to CGT. Between 49-67% agreed that CGT could have a negative impact on health insurance, increase their concern for the child's future and cause family conflicts. Parents against CGT (9%) were less optimistic regarding positive effects, but not more concerned with negative impacts. The severity of the children's ASD diagnosis had a weak positive association with parent's positive attitudes to CGT (p-values range from <0.001 to 0.975). Parents prefer that CGT is offered to thos...Continue Reading

References

Mar 1, 1988·Journal of Autism and Developmental Disorders·M B Jones, P Szatmari
Feb 4, 2003·Pediatrics·Donald B BaileyKaren L Sparkman
Jun 1, 2005·Community Genetics·Elizabeth Campbell, Lainie Friedman Ross
Aug 20, 2005·Journal of Child Psychology and Psychiatry, and Allied Disciplines·Marlene Briciet LauritsenPreben Bo Mortensen
Jan 19, 2006·American Journal of Medical Genetics. Part C, Seminars in Medical Genetics·William M McMahonJeffrey Botkin
Aug 30, 2008·Journal of Medical Genetics·C Lintas, A M Persico
Oct 3, 2009·Journal for Specialists in Pediatric Nursing : JSPN·Lynn RewDaniel Bonevac
Apr 17, 2010·Public Health Genomics·Wylie BurkeN Press
Sep 22, 2010·Issues in Mental Health Nursing·Lynn RewDaniel Bonevac
Jun 28, 2011·Human Genetics·Stephen W Scherer, Geraldine Dawson
Sep 21, 2011·Nature Reviews. Neuroscience·Pat WalshIlina Singh
Jan 13, 2012·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Donald B BaileyDebra Skinner
Jan 31, 2012·Journal of Community Genetics·Sirpa Soini
Jan 1, 2011·Developmental Disabilities Research Reviews·Kruti Acharya
Jun 20, 2012·Pediatrics·Pål SurénCamilla Stoltenberg
Jun 26, 2012·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Richard BränströmJulia Newton-Bishop
Nov 30, 2012·Clinical Pediatrics·Vivien NarcisaElizabeth Couchon
Dec 20, 2012·Current Psychiatry Reports·Karsten M Heil, Christian P Schaaf
Jan 5, 2013·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Lei-Shih ChenShweta U Dhar
Mar 23, 2013·Genetics in Medicine : Official Journal of the American College of Medical Genetics·G Bradley SchaeferUNKNOWN Professional Practice and Guidelines Committee
Oct 1, 2013·Lancet·Meng-Chuan LaiSimon Baron-Cohen
Mar 15, 2014·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Lindsay B HendersonDenise A S Batista
Jun 12, 2014·European Journal of Human Genetics : EJHG·Heather SkirtonCaroline Benjamin
Aug 12, 2014·Psychological Medicine·A J BaxterJ G Scott
Aug 19, 2014·American Journal of Medical Genetics. Part a·Michael L CuccaroSusan Hahn
Jan 27, 2015·Nature Medicine·Ryan K C YuenStephen W Scherer
Jan 31, 2015·The New England Journal of Medicine·Francis S Collins, Harold Varmus
Mar 25, 2015·Journal of Autism and Developmental Disorders·Wei Wei LaiMin Sung
May 28, 2015·Autism : the International Journal of Research and Practice·Ruth L FischbachBruce G Link
Jun 13, 2015·Journal of Autism and Developmental Disorders·Marian ReiffSurabhi Mulchandani
Jun 17, 2015·Journal of Autism and Developmental Disorders·Therese K GrønborgErik T Parner
Jul 23, 2015·American Journal of Medical Genetics. Part B, Neuropsychiatric Genetics : the Official Publication of the International Society of Psychiatric Genetics·Andrew PolyakSanthosh Girirajan
Sep 2, 2015·JAMA : the Journal of the American Medical Association·Kristiina TammimiesBridget A Fernandez
Sep 15, 2015·Issues in Comprehensive Pediatric Nursing·Nadya GolfenshteinBarbara Medoff-Cooper
Oct 29, 2015·European Journal of Human Genetics : EJHG·Gert MatthijsUNKNOWN European Society of Human Genetics
Nov 29, 2015·American Journal of Medical Genetics. Part B, Neuropsychiatric Genetics : the Official Publication of the International Society of Psychiatric Genetics·Andrew Polyak, Santhosh Girirajan
Feb 4, 2016·International Journal of Molecular Sciences·G Bradley Schaefer
Feb 13, 2016·Psychiatric Genetics·Jarle JohannessenOle A Andreassen
Feb 13, 2016·American Journal of Medical Genetics. Part B, Neuropsychiatric Genetics : the Official Publication of the International Society of Psychiatric Genetics·Kristien HensKris Dierickx
Jul 21, 2016·Autism : the International Journal of Research and Practice·Kristiina TammimiesSven Bölte
Aug 17, 2016·Nature Reviews. Genetics·Euan A Ashley
Aug 22, 2016·European Journal of Medical Genetics·Kristien HensKris Dierickx
Aug 30, 2016·Current Genetic Medicine Reports·Brenda Finucane, Scott M Myers

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Citations

Sep 29, 2018·Clinical Pediatrics·John W HarringtonSamantha Schrier Vergano
Apr 8, 2018·Clinical Medicine : Journal of the Royal College of Physicians of London·Beatrice Cooper
Nov 23, 2020·Journal of Autism and Developmental Disorders·Aynur Bütün AyhanSerkan Yılmaz
Mar 19, 2021·Frontiers in Artificial Intelligence·Mike Wald
Nov 16, 2021·European Journal of Human Genetics : EJHG·Jarle JohannessenOle A Andreassen
Dec 31, 2021·Autism Research : Official Journal of the International Society for Autism Research·Danyang LiKristiina Tammimies

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