Patient and Caregiver Perspectives on Managing Multiple Health Conditions

Journal of the American Geriatrics Society
Catherine RiffinTerri Fried

Abstract

To explore patient and caregiver experiences, preferences, and attitudes toward the provision and receipt of caregiving assistance with medical tasks. Qualitative study consisting of in-depth interviews with 20 patient-caregiver dyads. Community and academic-affiliated primary care clinics. Individuals aged 65 or older with 2 or more health conditions and their family caregivers (n=20 patient-caregiver dyads). Open-ended questions were asked about the tasks that the patient and caregiver performed to manage the patient's health conditions; questions were designed to elicit participant reactions and attitudes toward the help they provided or received. Transcripts were analyzed using the constant comparative method. Participant preferences and attitudes toward the receipt and provision of disease management tasks were highly personal. Participant responses clustered into 2 caregiving typologies: supportive caregiving relationships and conflicted caregiving relationships. Supportive relationships were characterized by patient-caregiver agreement about caregiver level of involvement, agreement about one another's competency to perform disease-related tasks, mutual understanding, collaborative decision-making and disease management,...Continue Reading

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Citations

Jan 12, 2019·Journal of the American Geriatrics Society·Catherine RiffinTerri Fried
Nov 21, 2020·Journal of the American Geriatrics Society·Catherine RiffinKarl A Pillemer
Jun 3, 2021·Journal of Clinical Medicine·Tullika GargJaime Hughes
May 27, 2021·Revista brasileira de enfermagem·Nildete Pereira GomesLélia Mendes Sobrinho de Oliveira
Jun 20, 2021·Journal of the American Geriatrics Society·Rachel O'ConorMichael S Wolf
Jul 25, 2021·International Journal of Environmental Research and Public Health·Patricia Marín-MaicasMari Carmen Portillo
Mar 25, 2019·Journal of the American Medical Directors Association·Terese Sara Høj JørgensenGeorge O Agogo

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