Patient and Family Caregivers' Experiences of Living With a Jejunostomy Feeding Tube After Surgery for Esophagogastric Cancer

JPEN. Journal of Parenteral and Enteral Nutrition
Vanessa HallidayDavid J Bowrey

Abstract

Jejunostomy feeding tubes (JFTs) can be used to provide nutrition support to patients who have had surgery for esophagogastric cancer. Although previous research reports how patients cope with a gastrostomy tube, little is known about the impact of having a JFT. The aim of this qualitative study was to explore how patients and their informal caregivers experience living with a JFT in the first months following surgery. Participants were purposively sampled from a cohort of patients recruited to a trial investigating home enteral nutrition vs standard care after esophagogastric surgery for cancer. The sampling framework considered age, sex, and marital status. Informal caregivers were also invited to participate. Interviews were audio recorded, transcribed verbatim, and anonymized. Inductive thematic analysis was used to identify key themes related to living with a JFT. Fifteen patient interviews were conducted; 8 also included a family caregiver. Analysis of the data resulted in 2 main themes: "challenges" and "facilitators" when living with a JFT. While "physical effects," "worries" and "impact on routine" were the main challenges, "support," "adaptation" and "perceived benefit" were what motivated continuation of the interven...Continue Reading

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Citations

Jun 7, 2018·Nursing Standard·Alethea Donnelly
Apr 23, 2019·Journal of Human Nutrition and Dietetics : the Official Journal of the British Dietetic Association·S M GreenM Fader
Dec 4, 2019·Journal of Human Nutrition and Dietetics : the Official Journal of the British Dietetic Association·A ThomasS T Burden
Jul 17, 2019·Journal of Human Nutrition and Dietetics : the Official Journal of the British Dietetic Association·A ThomasS T Burden
Jan 31, 2017·Frontline Gastroenterology·Karen BolandJohn V Reynolds
Apr 29, 2021·Journal of Human Nutrition and Dietetics : the Official Journal of the British Dietetic Association·Min XueMin Zhou

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